. 2017 Nov 1;27(3):689–701. doi: 10.1007/s10897-017-0164-x

Table 3.

Topic guide and interview schedule

Group	Questions
HCPs	• Introductory questions (e.g., what is your role? What kinds of patients do you see? How many per week?) • Is confidentiality important in the area of medicine that you are working in? • What aspects of the medical consultation should be kept confidential? • Are there guidance documents or protocols you follow for confidentiality? • How, if at all, do you talk about the limits of confidentiality in the consent process? • Regarding genetic test results, who do you think should be the one to tell the result to at-risk relatives? • Have you ever had experience of a patient telling you they were not going to inform their family of risk? Or a patient who you weren’t sure had told? • To what extent do you feel like you have a responsibility to make sure patients’ family members know they are at risk? • Regarding these issues, do you feel like you have enough support and training? • Who do you talk to about ethical issues? • What are your main ethical concerns, if you have any? • Do you have some other things you would like to raise?
Patients	• Introductory questions (e.g., tell me about yourself) • Can you start by telling me why you first thought about having a genetic test? • How did you feel before you went to talk to the genetics team? • What made you decide to have the test/not to have the test? • (Where relevant) Can you tell me what it was like receiving your results? • What do you think happens to your test result? • What does privacy/confidentiality/secrecy mean to you? • Whose responsibility is it to tell at-risk family members of risk? • What are your hopes and concerns about genetic testing? • Do you have some things you would like to add?

Group

Questions

HCPs

• Introductory questions (e.g., what is your role? What kinds of patients do you see? How many per week?)
• Is confidentiality important in the area of medicine that you are working in?
• What aspects of the medical consultation should be kept confidential?
• Are there guidance documents or protocols you follow for confidentiality?
• How, if at all, do you talk about the limits of confidentiality in the consent process?
• Regarding genetic test results, who do you think should be the one to tell the result to at-risk relatives?
• Have you ever had experience of a patient telling you they were not going to inform their family of risk? Or a patient who you weren’t sure had told?
• To what extent do you feel like you have a responsibility to make sure patients’ family members know they are at risk?
• Regarding these issues, do you feel like you have enough support and training?
• Who do you talk to about ethical issues?
• What are your main ethical concerns, if you have any?
• Do you have some other things you would like to raise?

Patients

• Introductory questions (e.g., tell me about yourself)
• Can you start by telling me why you first thought about having a genetic test?
• How did you feel before you went to talk to the genetics team?
• What made you decide to have the test/not to have the test?
• (Where relevant) Can you tell me what it was like receiving your results?
• What do you think happens to your test result?
• What does privacy/confidentiality/secrecy mean to you?
• Whose responsibility is it to tell at-risk family members of risk?
• What are your hopes and concerns about genetic testing?
• Do you have some things you would like to add?