Table 1.

Details of cohort

Characteristic	Whole cohort	Transplant recipients	Casesa
Sex
Male (% of whole cohort)	5612 (50%)	247 (49%)	36 (49%)
Female	5118 (45%)	242 (48%)	34 (47%)
Unknown	540 (5%)	20 (4%)	3 (4%)
Total	11,270	509	73
Patient age/year of birth
Median age at 01/02/2014 [10th, 90th percentiles]	13.5 y [3.0, 25.1]	18.9 y [8.0, 28.7]	24.0 y [8.5, 33.7]
Born < 1980 [% of total]	217 [2%]	27 [5%]	9 [12%]
Born 1980–1989	1346 [12%]	135 [27%]	35 [48%]
Born 1990–1999	4156 [37%]	209 [42%]	17 [23%]
Born 2000–2009	4486 [40%]	118 [24%]	12 [16%]
Born > 2010	1065 [9%]	11 [2%]	0
Cardiac catheterizations
Median age at first recorded procedure [10th, 90th percentiles]	3.2 y [0.1, 15.5]	9.0 y [1.1, 16.8]	11.6 y [0.9, 17.9]
Mean number of procedures [median, 10th, 90th percentiles]	1.5 [1, 1, 3]	4.5 [1, 4, 10]	3.4 [1, 2, 8]
1 procedure [% of total]	8489 [75%]	124 [25%]	36 [49%]
2 procedures	1555 [14%]	67 [13%]	9 [12%]
3 procedures	580 [5%]	57 [11%]	7 [10%]
4 procedures	229 [2%]	44 [9%]	2 [3%]
5 procedures	150 [1%]	53 [11%]	5 [7%]
> 5 procedures	267 [2%]	155 [31%]	14 [19%]
Computed tomography
Median age at first recorded scan [10th, 90th percentiles]	5.1 y [0.1, 17.8]	8.7 y [1.2, 17.7]	9.9 y [2.4, 20.6]
Mean number of procedures [median, 10th, 90th percentiles]	0.4 [0, 0, 1]	2.7 [1, 0, 8.2]	4.9 [1, 0, 14]
No scans [% of total]	9666 [86%]	238 [47%]	35 [48%]
1 scan	760 [7%]	74 [15%]	7 [10%]
2 scans	352 [3%]	47 [9%]	2 [3%]
3 scans	187 [2%]	32 [6%]	3 [4%]
4 scans	84 [1%]	24 [5%]	2 [3%]
5 scans	60 [1%]	19 [4%]	4 [5%]
> 5 scans	161 [1%]	75 [15%]	20 [27%]

SD standard deviation, y years

^aMalignant, borderline malignant and benign tumours