Table 2.

Steps for clinicians toward G-tube decisions

Build a decision-making partnership with the family

Allow adequate time for repeated discussions and for families to ‘work through’ their decision

Clarify the goals of G-tube feeding

Be clear about risks and benefits, but frame the intervention in positive terms

Elicit family values and preferences

Be sensitive to family context, including culture, decision-making styles, financial resources and caregiving support at home. Involve social workers, nurses and/or dieticians, as appropriate

Provide concrete examples of how G-tube feeding or continued oral feeding can impact child and family life

Engage extended family members in discussions (when parents wish)

Help parents to meet and share experiences with other families who have faced this decision

A decision not to start G-tube feeding may be appropriate. Ensure follow-up to reassess

Adapted from reference (12).