Table 2.
Participant characteristics
| Patients (n=18) | Family Caregivers (n=20) | Lay healthcare navigators (n=26) | ||||
|---|---|---|---|---|---|---|
| Characteristic | No. | % | No. | % | No. | % |
| Age, Mean (SD), Range | 58.0 (10.4), 40–84 | 56.0 (12.8), 28–77 | 44.7 (13.5), 26–66 | |||
|
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| Gender | ||||||
| Female | 6 | 33.3 | 19 | 95.0 | 21 | 80.8 |
| Male | 12 | 66.7 | 1 | 5.0 | 5 | 19.2 |
|
| ||||||
| Race | ||||||
| White | 15 | 83.3 | 17 | 85.0 | 15 | 57.7 |
| African-American/Black | 3 | 16.7 | 3 | 15.0 | 10 | 38.5 |
| Asian | 0 | 0.0 | 0 | 0 | 1 | 3.9 |
|
| ||||||
| Marital Status | ||||||
| Married or living with partner | 14 | 77.8 | 18 | 90.0 | - | - |
| Divorced or separated | 3 | 16.7 | 1 | 5.0 | - | - |
| Single | 1 | 5.6 | 0 | 0 | - | - |
| Widowed | 0 | 0.0 | 1 | 5.0 | - | - |
|
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| Education | ||||||
| Masters | 1 | 5.6 | 2 | 10.0 | 6 | 23.1 |
| College graduate | 2 | 11.1 | 2 | 10.0 | 14 | 53.9 |
| Some college | 3 | 16.7 | 7 | 35.0 | 5 | 19.2 |
| Vocational | 2 | 10.2 | 0 | 0 | 0 | 0.0 |
| High school | 9 | 50.0 | 7 | 35.0 | 1 | 3.9 |
| Some high school | 2 | 10.2 | 2 | 10.0 | 0 | 0.0 |
|
| ||||||
| Socioeconomic Status (Total Household Income) | ||||||
| <$30,000 | 6 | 33.3 | 8 | 40.0 | - | - |
| $30,000-$49,999 | 5 | 27.8 | 3 | 15.0 | - | - |
| >$50,000 | 7 | 38.9 | 8 | 40.0 | - | - |
| Rather not say | 0 | 0 | 1 | 5.0 | - | - |
|
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| Religion | ||||||
| Protestant | 16 | 88.9 | 17 | 85.0 | 18 | 69.2 |
| No religious affiliation | 1 | 5.6 | 1 | 5.0 | 1 | 3.9 |
| Other | 1 | 5.6 | 2 | 10.0 | 7 | 26.9 |
|
| ||||||
| Employment Status | ||||||
| Employed full time | 5 | 27.8 | 7 | 35.0 | 26 | 100.0 |
| Employed part time | 1 | 5.6 | 4 | 20.0 | 0 | 0 |
| Retired or Homemaker | 3 | 16.7 | 7 | 35.0 | 0 | 0 |
| Unemployed | 9 | 50.0 | 2 | 10.0 | 0 | 0 |
|
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| Advanced cancer type | ||||||
| Genitourinary | 6 | 33.3 | - | - | - | - |
| Lung | 3 | 16.7 | - | - | - | - |
| Hematologic | 3 | 16.7 | - | - | - | - |
| Brain | 2 | 11.1 | - | - | - | - |
| Gastrointestinal | 2 | 11.1 | - | - | - | - |
| Breast | 1 | 5.6 | - | - | - | - |
| Gynecologic | 1 | 5.6 | - | - | - | - |
|
| ||||||
| My health is… | ||||||
| Poor or Fair | 9 | 50.0 | 6 | 30.0 | - | - |
| Good | 4 | 22.2 | 8 | 40.0 | - | - |
| Very Good or Excellent | 5 | 27.8 | 6 | 30.0 | - | - |
|
| ||||||
| Relationship to patient (This person is my…) | ||||||
| Spouse/partner | - | - | 14 | 70.0 | - | - |
| Parent | - | - | 1 | 5.0 | - | - |
| Child | - | - | 1 | 5.0 | - | - |
| Other family member | - | - | 2 | 10.0 | - | - |
| Sibling | - | - | 1 | 5.0 | - | - |
| Friend/Neighbor | - | - | 1 | 5.0 | - | - |
|
| ||||||
| Months as a caregiver, Mean (SD), Range | - | - | 27.1 (34.9), 1-135 | |||
|
| ||||||
| Days per week providing care | ||||||
| <1 | - | - | 5 | 25.0 | - | - |
| 4–5 | - | - | 3 | 15.0 | - | - |
| 6 | - | - | 1 | 5.0 | - | - |
| Everyday | - | - | 11 | 55.0 | - | - |
|
| ||||||
| Hours per day providing care | ||||||
| <1 | - | - | 4 | 20.0 | - | - |
| 1–2 | - | - | 5 | 25.0 | - | - |
| 3–4 | - | - | 2 | 10.0 | - | - |
| 5–6 | - | - | 1 | 5.0 | - | - |
| 7–8 | - | - | 2 | 10.0 | - | - |
| >8 | - | - | 6 | 30.0 | - | - |
|
| ||||||
| Navigator experience (years), Mean (SD), Range | - | - | - | - | 2.07 (1.9), 0.7–2.3 | |