1. Motivation for searching for health information online
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1.1 Searching for information for themselves |
“When it is something that I cannot explain, like I have multiple symptoms and I don’t know if all these symptoms are related, unrelated...” [Alan] |
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1.2 Hypochondria |
“I’m a little hypochondriac, I mean literally last night I was feeling nauseous, so I started to Google, so anytime I’m feeling an odd symptom...anytime I feel something is abnormal and I’ll look up those symptoms to see if I have anything, from nausea and headaches to weird circulatory feelings.” [Rita] |
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1.3 Searching for information for someone else |
“Last time I looked up stuff online was for my grandfather. He suffered from Parkinson’s...and we were looking for alternatives.” [Nathan] |
2. Strategies for searching for information online
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2.1 Using a search engine (Google) |
“I usually Google either my symptoms if I don’t know what it is, or if I have an idea of what it might be then I'll Google that.” [Betty] |
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2.2 Using a renowned medical website |
“I just Google but the ones I usually end up in are WebMD or mayo clinic, I think if you Google something those are the first ones that show up anyway.” [Rita] |
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2.3 Using websites or forums with patient experiences |
“...there are a lot of useful forums where experienced marathoners have training advice, stuff like that. When to do icing or heat, which one is better than the other.” [Ella] |
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2.4 Strategies for evaluating OCHI websites |
“I usually avoid sites that are trying to sell you stuff or that anyone can edit.” [Tamara] |
3. Making sense of the information
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3.1 Understanding the information found |
“I understand it, I might have to do further research for specific terms, but overall I understand what they’re saying.” [Alan] |
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3.2 Gaining general knowledge without answering a specific question |
“Sometimes you don’t know what is wrong or right and each case is different as well, so you have an idea globally, but you don’t really have the answer I guess.” [Mariah] |
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3.3 Not finding the answer to a specific health question |
“No. I would have a symptom and it would usually end with me convincing myself that I had some sort of terminal illness.” [Cara] |
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3.4 How health literacy influences understanding |
“No, I can usually understand it. I feel like I may be more science and health literate than a lot of people since I have a Bachelor’s degree in Science.” [Betty] |
4. Decision making after finding relevant OCHI
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4.1. Deciding whether or not to book a medical appointment |
“I wouldn’t say immediately but when I have a recurring kind of problem, so I'll look at it probably before calling the doctor and making an appointment.” [Isabel] |
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4.2 Postponing a medical appointment because of limited access |
“It’s not even that, it’s that you have to wait so long now to get an appointment that if I can home remedy it that’s how I sort of look at it.” [Isabel] |
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4.3 Making a health care decision |
“Usually if it’s something like I can change what I’m eating, I follow if it doesn’t seem to extreme or too hard to do. If it’s something that seems a bit ridiculous then...” [Tamara] |
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4.4 Stopping a medication |
“I’ve looked up stuff like side effects of birth control pills if I’m worried or more emotional, I’ll see if that is one. I’ve actually gone off [pills] because of that.” [Jenny] |
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4.5 Discussion in a physician encounter |
“Some things I’ll bring up when seeing my physician and get their advice on it.” [Dina] |
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4.6 To confirm a physician’s diagnosis |
“Yes, I have symptoms and look them up and if I find what I think it is I go to the doctor and I’ll let the doctor suggest on their own but I’ll kind of suggest that this what I think it could be, could you confirm that for me or not?” [Sarah] |