Table 1.
Patient demographic and clinical characteristics | Wave 1 concept elicitation sample (n = 88) | Wave 1 RMT analysis sample (n = 29) | Wave 2 debriefing and RMT sample (n = 30) |
---|---|---|---|
PDSS score (n, %) | |||
0 – normal | 44 (50%) | 18 (62.1%) | 13 (43.3%) |
1 – mild disability | 44 (50%) | 11 (37.9%) | 17 (56.7%) |
Age in years (mean±SD) | 40.0 (±8.72) | 38.51 (±7.66) | 35.07 (±8.11) |
Gender (n, %) | |||
Male | 23 (26.1%) | 7 (24.1%) | 7 (23.3%) |
Female | 65 (73.9%) | 22 (75.9%) | 23 (76.7%) |
Race/ethnicity (n, %) | |||
White | 76 (86.4%) | 26 (89.7%) | 19 (63.3%) |
Asian | 1 (1.1%) | 0 (0%) | 1 (3.3%) |
Black/African-American | 5 (5.7%) | 1 (3.4%) | 5 (16.7%) |
Hispanic/Latino | 5 (5.7%) | 1 (3.4%) | 2 (6.7%) |
Mixed race or “other” | 1 (1.1%) | 1 (3.4%) | 3 (10.0%) |
Education (n, %) | |||
High school | 11 (12.5%) | 4 (13.8%) | 2 (6.7%) |
Some college/associate degree/trade certification | 28 (31.8%) | 7 (24.1%) | 12 (40%) |
Bachelor’s degree | 32 (36.4%) | 11 (37.9%) | 7 (23.3%) |
Post-graduate degree | 17 (19.3%) | 7 (24.1%) | 9 (30.0%) |
Employment status (n, %) | |||
Full time | 57 (64.8%) | 20 (68.9%) | 22 (73.3%) |
Part time | 14 (15.9%) | 1 (3.4%) | 5 (16.7%) |
Not employed | 10 (11.4%) | 5 (17.2%) | 2 (6.7%) |
Student | 2 (2.2%) | 1 (3.4%) | 1 (3.3%) |
Homemaker | 5 (5.7%) | 2 (6.9%) | 0 (0.0%) |
PDSS: Patient Determined Disease Steps; RMT: Rasch measurement theory; SD: standard deviation.