Table I.
Youth and Parent Demographic and Condition Information at Time 1
| Youth (N = 140)M (SD) or N (%) | Mother (N = 128)M (SD) or N (%) | Father (N = 102)M (SD) or N (%) | |
|---|---|---|---|
| Gender: female | 75 (53.6%) | – | – |
| Age | 11.43 (2.46) | 40.94 (6.88) | 42.90 (6.94) |
| Race | |||
| Caucasian | 74 (52.86%) | 79 (61.72%) | 68 (65.38%) |
| African-American/Black | 19 (13.57%) | 14 (10.94%) | 7 (6.73%) |
| Hispanic | 39 (27.86%) | 29 (22.65%) | 26 (25.00%) |
| Asian | 2 (1.43%) | 1 (0.78%) | 1 (0.96%) |
| Bi-racial | 6 (4.28%) | 1 (0.78%) | 0 (0.00%) |
| Not reported | 0 (0.00%) | 4 (3.13%) | 2 (1.92%) |
| Family SES | 39.44 (15.90) | – | – |
| Two-parent household | 112 (69.6%) | ||
| IQ | 85.68 (19.68) | – | – |
| Illness severity | 7.86 (1.58) | – | – |
| Spina bifida type | |||
| Myelomeningocele | 123 (87.86%) | – | – |
| Other | 17 (12.14%) | – | – |
| Lesion level | |||
| Thoracic | 29 (20.71%) | – | – |
| Lumbar | 86 (61.42%) | – | – |
| Sacral | 18 (12.86%) | – | – |
| Unknown/not reported | 7 (5.00%) | – | – |
| Shunt: present | 109 (77.86%) | – | – |
| Ambulation | |||
| No assistance | 34 (24.28%) | – | – |
| K.F.O or A.F.O | 16 (11.43%) | – | – |
| Wheelchair | 83 (59.29%) | – | – |
| Not reported | 7 (5.00%) | – | – |