Table 4.
Perceived benefits among all survey respondents (N=7434).
| Benefit | Respondents, n (%) | P valuea | |||||||||||
|
|
Total survey respondents (N=7434)b |
With community customization (n=5344) |
Without community customization (n=2045) |
|
|||||||||
| Knowledge and understanding of condition (Has PatientsLikeMe improved your understanding of...) |
|
|
|
|
|||||||||
|
|
How your condition(s) might affect you? | 4530 (66.91) | 2987 (71.05) | 918 (59.11) | <.001 | ||||||||
|
|
What might help you live better with your condition(s)? | 4247 (62.92) | 2805 (66.77) | 852 (54.97) | <.001 | ||||||||
|
|
Treatment side effects? | 4182 (60.59) | 2747 (64.20) | 854 (53.58) | <.001 | ||||||||
|
|
Available treatments? | 4143 (60.06) | 2765 (64.69) | 819 (51.32) | <.001 | ||||||||
|
|
Important factors in making decisions about treatments? | 3919 (57.52) | 2538 (60.40) | 808 (51.04) | <.001 | ||||||||
|
|
What might help you get better? | 3339 (50.37) | 2159 (52.76) | 664 (43.40) | <.001 | ||||||||
|
|
How to deal with other problems in your life (eg, stress, work, money) that may be caused by your condition(s)? | 3250 (47.86) | 2102 (49.94) | 679 (43.30) | <.001 | ||||||||
| Condition treatment and management (As a result of PatientsLikeMe have you...) |
|
|
|
|
|||||||||
|
|
Had better conversations with your health care professionals? | 3592 (51.62) | 2344 (54.61) | 762 (47.24) | <.001 | ||||||||
|
|
Managed your symptoms better? | 3179 (45.64) | 2131 (49.51) | 634 (39.28) | <.001 | ||||||||
|
|
Been better at taking your medication? | 2251 (33.74) | 1437 (34.94) | 475 (30.55) | .14 | ||||||||
|
|
Tried a new way to manage side effects? | 2089 (29.79) | 1374 (32.73) | 440 (27.01) | <.001 | ||||||||
|
|
Asked to see a specialist doctor? | 1699 (24.79) | 1011 (24.06) | 411 (25.77) | >.99 | ||||||||
|
|
Started a new treatment? | 1046 (14.71) | 692 (15.77) | 196 (11.90) | .02 | ||||||||
|
|
Stopped a treatment? | 993 (13.91) | 651 (14.80) | 220 (13.27) | .09 | ||||||||
|
|
Changed your doctor? | 899 (12.59) | 546 (12.38) | 220 (13.34) | >.99 | ||||||||
aP values adjusted using Bonferroni correction.
bPercentages calculated out of valid nonmissing data and after removal of “does not apply” responses. A range of approximately 3% to 10% were observed across benefit questions.