Table 2.

Outcome domains identified and how they were reported in 86 follow‐up studies

Outcome domains	Studies	Individual outcomes	Unique outcome terms	Standardized outcome terms
Survival	78	191	33	11
Disease activity	81	249	111	7
Life impact	5	7	1	1
Delivery of care	11	14	12	1
Toxicity
Gastrointestinal	72	317	151	22
Dermatological	57	88	53	6
Haematological	48	120	39	6
Musculoskeletal	14	19	18	3
Urinary	33	45	26	6
Sexual and reproductive	11	15	15	6
Constitutional symptoms	12	18	10	6
Other toxicitiesa	35	68	51	8
Total	86	1151	520	83

Values are given as absolute numbers.

^aCardiac, lymphatic, immunological, respiratory, hepatic, neurological, endocrine and non‐specified toxicity.