Table 1.

Overview of the interview items for mother and fathers

Central questions	Check
How was the course of the disease so far?	□Diagnosis
	□Progress
	□Symptoms
	□Treatment
	□Side effects
What changes, stressors and challenges do you face because of the disease?	□myself
	□as a parent
	□my partner
	□children
	□as a family
Can you describe what kind of support you would have needed or still need with regard to your parental role?	□personal needs
	□needs of family members
	□use of support system
What did help you and your family during the course of the disease?	□resources
	□sources of strength as a parent
	□sources of strength for the family