Table 3.
Percentage of answers by category response in each item
| Items | Never (%) | Sometimes (%) | Usually (%) | Always (%) | Does not apply to my current situation (%) | No answer (%) | |
|---|---|---|---|---|---|---|---|
| 1 | I keep my habitual mealtimes because of HEN (e.g. breakfast, lunch, and dinner) | 3.84% | 6.41% | 32.05% | 51.92% | 5.13% | 0.64% |
| 2 | I can adjust HEN to unexpected events (e.g. leaving the house suddenly, an unscheduled visit). | 6.41% | 25.64% | 17.31% | 39.74% | 9.61% | 1.28% |
| 3 | I can feed myself with HEN and I do not have to be hospitalized for that. | 3.85% | 1.28% | 6.41% | 71.15% | 15.38% | 1.92% |
| 4 | I am forced to spend most of the day sitting or lying down for food because of HEN. | 39.74% | 10.90% | 14.74% | 12.82% | 19.87% | 1.92% |
| 5 | HEN suits my preferences (e.g. smell, temperature, and flavor). | 6.41% | 12.82% | 23.72% | 31.41% | 25.00% | 0.64% |
| 6 | I find HEN products suit my other health problems (e.g. products without sugar because I am diabetic, without salt because I am hypertensive). | 9.62% | 1.92% | 8.33% | 24.36% | 53.21% | 2.56% |
| 7 | Since I receive HEN, I move more easily; I feel more agile. | 10.26% | 16.03% | 21.79% | 28.85% | 21.15% | 1.92% |
| 8 | HEN damages my skin (e.g. dryness, irritation, infection). | 52.56% | 12.82% | 1.92% | 1.28% | 30.13% | 1.28% |
| 9 | HEN lets me eat away from home. | 17.95% | 18.59% | 7.69% | 39.10% | 14.74% | 1.92% |
| 10 | Since receiving HEN, I need more help with my personal hygiene (e.g. showering, dressing). | 53.85% | 6.41% | 5.13% | 6.41% | 27.56% | 0.64% |
| 11 | HEN lets me keep doing housework (e.g. cooking, ironing, cleaning). | 5.13% | 14.10% | 10.90% | 31.41% | 37.18% | 1.28% |
| 12 | HEN lets me enjoy my hobbies. | 5.77% | 18.59% | 16.03% | 38.46% | 19.23% | 1.92% |
| 13 | HEN hinders having sex. | 32.05% | 4.49% | 2.56% | 5.77% | 52.56% | 2.56% |
| 14 | Since receiving HEN, I have problems to travel several days. | 42.95% | 8.33% | 3.21% | 15.38% | 28.85% | 1.28% |
| 15 | After some time receiving HEN, I can think about going back to work. | 13.46% | 8.33% | 2.56% | 5.77% | 67.31% | 2.56% |
| 16 | HEN lets me go out with my friends. | 10.26% | 13.46% | 14.10% | 44.23% | 16.67% | 1.28% |
| 17 | Since receiving HEN, I have stopped going to family celebrations (e.g. weddings, birthdays). | 50.00% | 12.82% | 5.77% | 12.82% | 16.67% | 1.92% |
| 18 | HEN prevents me from sleeping well. | 69.23% | 12.18% | 0.64% | 1.92% | 14.74% | 1.28% |
| 19 | I have a good appetite because of HEN. | 16.67% | 28.85% | 19.23% | 23.72% | 10.90% | 0.64% |
| 20 | Since receiving HEN, I fend for myself; I can do more things without help. | 9.62% | 13.46% | 25.00% | 24.36% | 26.92% | 0.64% |
| 21 | Since receiving HEN, my physical appearance is improving (e.g. I look healthier). | 6.41% | 19.87% | 25.00% | 42.95% | 5.13% | 0.64% |
| 22 | I worry that my body is adapting to HEN and I will not be able to feed as before. | 21.15% | 17.31% | 7.05% | 22.44% | 30.77% | 1.28% |
| 23 | I miss chewing and tasting food because of HEN. | 14.74% | 12.82% | 5.77% | 32.05% | 33.33% | 1.28% |
| 24 | Since receiving HEN, I find it a sacrifice to prepare food for others. | 26.28% | 8.33% | 3.85% | 4.49% | 55.13% | 1.92% |
| 25 | I need help to eat because I cannot do it alone with HEN. | 47.44% | 4.49% | 3.85% | 10.90% | 32.05% | 1.28% |
| 26 | My food preparation is simpler because of HEN. | 14.10% | 10.90% | 5.77% | 26.28% | 39.74% | 3.20% |
| 27 | I have physical discomfort because of HEN (e.g. bloating, heartburn, dry mouth, regurgitation). | 46.15% | 35.26% | 5.77% | 7.05% | 5.13% | 0.64% |
| 28 | Getting HEN products is simple (i. e. they are available in pharmacies and I can easily get the preparation). | 5.77% | 5.77% | 15.38% | 67.31% | 4.49% | 1.28% |
| 29 | I find it unpleasant to eat with other people because of HEN. | 53.85% | 9.62% | 3.85% | 8.97% | 21.79% | 1.92% |
| 30 | HEN lets me eat with my family. | 14.74% | 13.46% | 8.97% | 46.15% | 14.10% | 2.56% |
| 31 | I limit activities with my friends to those that are not food-related because of HEN. | 38.46% | 10.90% | 8.97% | 14.10% | 25.00% | 2.56% |
| 32 | I sense that others feel bad about me because of HEN. | 50.64% | 14.74% | 7.05% | 7.05% | 18.59% | 1.92% |
| 33 | Since receiving HEN, my family is more worried about my health. | 44.23% | 17.31% | 10.26% | 19.23% | 7.69% | 1.28% |
| 34 | Since receiving HEN, my family watches over my food. | 14.10% | 19.23% | 14.10% | 44.23% | 7.69% | 0.64% |
| 35 | Since receiving HEN, I have to explain how I feed. | 37.82% | 31.41% | 8.33% | 5.13% | 15.38% | 1.92% |
| 36 | Receiving HEN causes me an added problem. | 60.90% | 17.31% | 7.05% | 6.41% | 7.05% | 1.28% |
| 37 | Since receiving HEN, I feel stronger and more energetic. | 7.05% | 23.72% | 23.72% | 39.10% | 5.13% | 1.28% |
| 38 | Since receiving HEN, I am more worried about my health. | 43.59% | 22.44% | 8.97% | 11.54% | 10.90% | 2.56% |
| 39 | Since receiving HEN, I feel sad. | 60.26% | 21.15% | 3.85% | 3.85% | 8.97% | 1.92% |
| 40 | I would change the HEN administration route (e.g. From nasogastric tube to oral administration). | 46.79% | 5.13% | 0.64% | 9.62% | 34.62% | 3.20% |
| 41 | I trust I am well-nourished because of HEN. | 1.28% | 2.56% | 12.82% | 80.14% | 1.92% | 1.28% |
| 42 | I have gained weight because of HEN. | 11.54% | 28.21% | 17.31% | 36.54% | 3.21% | 3.20% |
| 43 | I have adapted to receiving HEN. | 2.56% | 6.41% | 23.72% | 64.10% | 1.28% | 1.92% |