Table 2. List of questions in the FXS-EDQ on initial parental concerns and the emergence of FXS-related behaviours used for the present study.

When did you get concerned for the first time suspecting a developmental disorder?a

Which developmental area (e.g., motor, speech/language, others) made you particularly concerned at first?

Did your child feel uncomfortable when being cuddled? If yes, when did you observe it for the first time?

Did your child avoid eye contact? If yes, when did you observe it for the first time?

Was your child exceptionally shy? If yes, when did you observe it for the first time?

Was your child particularly aggressive? If yes, when did you observe it for the first time?

Was your child particularly anxious? If yes, when did you observe it for the first time?

Did your child have panic attacks? If yes, when did you observe it for the first time?

Did your child consistently repeat words not suitable for the situation? If yes, when did you observe it for the first time?

Was your child constantly in motion (or hyperactive)? If yes, when did you observe it for the first time?

Did your child have hand stereotypies, e.g., waggling his/her hands? If yes, when did you observe it for the first time?

Did your child repeatedly bite his/her hand? If yes, when did you observe it for the first time?

Note. FXS-EDQ = Fragile X Syndrome – Early Development Questionnaire.

^aExcept for the second question listed in this table, the participants were provided with the following options: (a) between the 1^st and the 6^th month; (b) between the 7^th and the 12^th month; (c) between the 13^th and the 18^th month; (d) between the 19^th and the 24^th month; (e) later than 24 months; (f) I cannot remember the age. For each question, extra space was also assigned for any additional comment.