Table 1.
Domain | Hyperlinked concepts and termsa |
---|---|
Research processes | “researchers,” “research registry,” “Institutional Review Board” |
Health records | “health record information,” “information you have shared with any of your doctors or nurses” |
Risks and benefits of research participation | “not be penalized or lose any benefits to which you are otherwise entitled,” “minimal risk,” “small risk,” “benefit you,” “[risks that] could affect you or your family” |
Data protections | “kept in a safe location,” “password protected,” “encrypted computer server,” “publish or report your name or other information about you in particular,” “people who should not have [your health information],” “keep your information secure and confidential” |
aSome terms were hyperlinked multiple times, resulting in 19 hyperlinks for 16 unique concepts and terms.