Table 5.

Types of information participants found reassuring

Type of reassuring information	Representative quotes
Data protections	The key is set, is kept very safe by the computer and only given to people who are allowed to see your list of medicines. I like that specific example, too. I think it would put – it put my mind at ease. I think it would put other people’s mind at ease about the protection of personal information.
Researcher availability	You may contact [study PI] if you have any questions or concerns. I appreciate that statement right there, because sometimes I do have questions. I would like to talk directly to someone instead of being told to call back or talk to a machine.
Researcher and/or institutional expertise	It’s good to know that you have to have special training to actually authorize and access people’s records.
Not sharing personal information with drug companies	To be seen by or sold to drug companies. Thank God. Oh, goodness. Okay, I chuckle at that, because particularly seniors already pay through the nose about drug companies. I wouldn’t trust their ethics or their motivation for getting the information.
	P: That’s cool. That’s interesting. My health record cannot be sold by or seen by the drug companies.
	I: Why is that interesting to you?
	P: I wouldn’t want phone calls from different drug companies, so I would think that would be a good thing. Getting phone calls, “Try this drug. Try this drug.”
Rights as research subject	P: “No studies on people can be conducted at the University of Florida without a thorough review of the ethics of the study and rigorous protection of the patient.” Okay. In other words, they have to come and ask me. They can’t do a study on me unless they come to me and get my consent. Correct?
	I: That’s what you understand it.
	P: Okay. That is something that is noted that is a positive.
	Then I like the no cost for the participation.