Table 1.
Summary and timing of stroke survivor and carer assessments
| Assessment | Screening | Baseline | Time-point (post registration) | ||
|---|---|---|---|---|---|
| 3 months | 6 months | 9 months | |||
| Screening | X | ||||
| Eligibility | X | ||||
| Informed consent/Consultee declaration | X | ||||
| Baseline | X | ||||
| Registration | X | ||||
| Stroke Survivor Questionnaires | |||||
| Demographic details | X | ||||
| WHODAS 2.0 | X | X | X | ||
| WEMWBS | X | X | X | ||
| PAM® Survey | X | X | X | ||
| EQ-5D-5L | X | X | X | X | |
| ICECAP-A | X | X | X | X | |
| LUNS | X | X | |||
| GP patient survey (two questions) | X | X | X | ||
| Social questions | X | X | X | ||
| Health and social care resource use (stroke survivor and provider reported) | X | X | X | X | |
| Adverse events | X | X | X | ||
| Hospital admissions | X | X | X | ||
| Carer Questionnaires | |||||
| Demographic details (on each carer if applicable) | X | (X) | (X) | (X) | |
| Caregiver Burden Scale | X | X | X | X | |
| ICECAP-A | X | X | X | X | |
| EQ-5D-5L | X | X | X | X | |
| Health and social care resource use | X | X | X | X | |
EQ-5D-5L EQ-5D with 5 levels of severity for each of the 5 dimensions, ICECAP-A ICEpop CAPability measure for Adults, LUNS Longer-term Unmet Needs after Stroke tool, PAM Patient Activation Measure, WEMWBS Warwick-Edinburgh Mental Well-being Scale, WHODAS World Health Organization Disability Assessment Schedule