Table 1. Characteristics of 197 young people with Down syndrome, by Kidscreen-10 completion status.
| Kidscreen-10 | ||||
|---|---|---|---|---|
| Completed (N = 175) |
Did not complete (N = 22) |
|||
| Personal sociodemographic factors | ||||
| Gender, n (%) | ||||
| Male | 97 | (55.4) | 13 | (59.1) |
| Female | 78 | (44.6) | 9 | (40.9) |
| Age group, n (%) | ||||
| 16–18 years | 25 | (14.3) | 5 | (22.7) |
| 19–22 years | 54 | (30.9) | 4 | (18.2) |
| 23–31 years | 96 | (54.9) | 13 | (59.1) |
| Parent sociodemographic factors | ||||
| Mother’s age, n (%) | ||||
| 38–45 | 13 | (7.4) | 2 | (9.1) |
| 46–55 | 68 | (38.9) | 6 | (27.3) |
| 56 and older | 90 | (51.4) | 14 | (63.6) |
| Missing | 4 | (2.3) | 0 | (0) |
| Father’s age, n (%) | ||||
| 42–55 | 69 | (39.4) | 7 | (31.8) |
| 56–65 | 63 | (36.0) | 8 | (36.4) |
| 66 and older | 25 | (14.3) | 4 | (18.2) |
| Missing | 18 | (10.3) | 3 | (13.6) |
| Mother’s occupation, n (%) | ||||
| Full-time work | 36 | (20.6) | 7 | (31.8) |
| Part-time work | 65 | (37.1) | 6 | (27.3) |
| Not working | 68 | (38.9) | 9 | (40.9) |
| Missing | 6 | (3.4) | 0 | |
| Father’s occupation, n (%) | ||||
| Full-time work | 85 | (48.6) | 7 | (31.8) |
| Part-time work | 16 | (9.1) | 1 | (4.6) |
| Not working | 36 | (20.6) | 7 | (31.8) |
| Missing | 38 | (21.7) | 7 | (31.8) |
| Mother’s educationa, n (%) | ||||
| Primary school | 40 | (22.8) | 7 | (31.8) |
| Completed high school | 38 | (21.7) | 3 | (13.6) |
| Advanced diploma | 32 | (18.3) | 3 | (13.6) |
| Bachelor degree | 60 | (34.3) | 8 | (36.4) |
| Missing | 5 | (2.9) | 1 | (4.6) |
| Father’s educationa, n (%) | ||||
| Primary school | 24 | (13.7) | 2 | (9.1) |
| Completed high school | 25 | (14.3) | 1 | (4.6) |
| Advanced diploma | 48 | (27.4) | 7 | (31.8) |
| Bachelor degree | 58 | (33.1) | 6 | (27.3) |
| Missing | 20 | (11.4) | 6 | (27.3) |
| Family factors | ||||
| Living region, n (%) | ||||
| Major cities of Australia | 128 | (73.1) | 16 | (72.7) |
| Inner regional Australia | 20 | (11.4) | 4 | (18.2) |
| Outer regional and remote | 26 | (14.9) | 2 | (9.1) |
| Missing | 1 | (0.6) | 0 | (0) |
| Annual family income, n (%) | ||||
| Less than AU$31,199 | 30 | (17.1) | 6 | (27.3) |
| Between AU$31,200 and AU$51,999 | 28 | (16.0) | 2 | (9.1) |
| Between AU$52,000 and AU$71,999 | 23 | (13.1) | 0 | (0) |
| Above AU$72,000 | 77 | (44.0) | 5 | (22.7) |
| Missing | 17 | (9.7) | 9 | (40.9) |
| Savings, n (%) | ||||
| No savings | 44 | (25.1) | 8 | (36.4) |
| We can save a bit | 92 | (52.6) | 6 | (27.3) |
| We can save a lot | 35 | (20.0) | 2 | (9.1) |
| Missing | 4 | (2.3) | 6 | (27.3) |
| Carer’s emotional state (DASS), n mean (SD) range | ||||
| Depression of all mothers | 139 | 5.8 (7.0) 0–34 | 11 | 6.7 (6.6) 0–20 |
| Depression of all carers | 162 | 5.7 (6.8) 0–34 | 12 | 6.3 (6.5) 0–20 |
| Anxiety of all mothers | 139 | 3.4 (5.7) 0–28 | 11 | 4 (6.7) 0–20 |
| Anxiety of all carers | 162 | 3.5 (5.5) 0–28 | 12 | 4 (6.4) 0–20 |
| Stress of all mothers | 139 | 8.4 (8.0) 0–40 | 11 | 8.4 (6.1) 0–20 |
| Stress of all carers | 162 | 8.3 (7.7) 0–40 | 12 | 8.8 (6.0) 0–20 |
| Personal social factors | ||||
| Day occupationb, n (%) | ||||
| Open work environment | 36 | (20.6) | 3 | (13.6) |
| In a sheltered workshop | 76 | (43.4) | 6 | (27.3) |
| Post-secondary classes | 45 | (25.7) | 7 | (31.8) |
| Missing | 18 | (10.3) | 6 | (27.3) |
| Number of friends, n (%) | ||||
| No friends | 35 | (20.0) | 5 | (22.7) |
| 1–2 friends | 77 | (44.0) | 7 | (31.8) |
| 3 or more friends | 63 | (36.0) | 4 | (18.2) |
| Missing | 0 | (0) | 6 | (27.3) |
| Needs are metc, n (%) | ||||
| Yes | 114 | (65.1) | 11 | (50.0) |
| No | 47 | (26.9) | 5 | (22.7) |
| Missing | 14 | (8.0) | 6 | (27.3) |
| Behaviour, n (%) | ||||
| <46 | 137 | (78.3) | 12 | (54.6) |
| 46 and higher | 36 | (20.6) | 2 | (9.1) |
| Missing | 2 | (1.1) | 8 | (36.4) |
| Functioning in activities of daily living, n mean (SD) range | ||||
| Self care | 175 | 20.2 (4.0) 7–26 | 21 | 17.5 (5.0) 7–24 |
| Community skills | 175 | 11.4 (4.2) 4–19 | 21 | 8.4 (4.1) 4–16 |
| Communication skills | 175 | 5.8 (1.5) 2–8 | 21 | 4.7 (1.7) 2–8 |
| Total | 175 | 37.4 (8.6) 13–52 | 21 | 30.6 (9.6) 13–47 |
| Personal medically related factors | ||||
| BMI, n (%) | ||||
| Healthy weight (<25) | 37 | (21.1) | 5 | (22.7) |
| Overweight (25–30) | 38 | (21.7) | 1 | (4.6) |
| Obese (>30) | 56 | (32.0) | 5 | (22.7) |
| Missing | 44 | (25.1) | 0 | (0) |
| Physical activity per week, n (%) | ||||
| 0–2 days | 56 | (32.0) | 5 | (22.7) |
| 3–4 days | 56 | (32.0) | 1 | (4.6) |
| 5 days or more | 57 | (32.6) | 8 | (36.4) |
| Missing | 6 | (3.4) | 8 | (36.4) |
| Mental health visits, n (%) | ||||
| No | 147 | (84.0) | 12 | (54.6) |
| Yes | 26 | (14.9) | 5 | (22.7) |
| Missing | 2 | (1.1) | 5 | (22.7) |
| Global impact of illness, n (%) | ||||
| 0 | 27 | (15.4) | 7 | (31.8) |
| 1–4 | 58 | (33.1) | 4 | (18.2) |
| 5–8 | 39 | (22.3) | 4 | (18.2) |
| 9 and above | 51 | (29.1) | 7 | (31.8) |
| Impact of mental health illnesses, n (%) | ||||
| None to minor | 149 | (85.1) | 20 | (90.9) |
| Moderate to major | 26 | (14.9) | 2 | (9.1) |
| Impact of skin conditions, n (%) | ||||
| None to minor | 144 | (82.3) | 21 | (95.5) |
| Moderate to major | 31 | (17.7) | 1 | (4.6) |
| Impact of bowel conditions, n (%) | ||||
| None to minor | 151 | (86.3) | 19 | (86.4) |
| Moderate to major | 324 | (13.7) | 3 | (13.6) |
| Impact of hearing loss, n (%) | ||||
| None to minor | 145 | (82.9) | 19 | (86.4) |
| Moderate to major | 30 | (17.1) | 3 | (13.6) |
a Grouped and categorised as primary school and some high school, completed high school Year 12 or equivalent, advanced diploma, bachelor degree or graduate diploma or certificate and postgraduate degree (Masters or PHD).
b Open work environment: must not be attending school. Post secondary classes: alternatives to employment, and not working.
c Needs are met under the current day activity arrangements