Table 2.
Postcard qualitative summary of open-ended responses (n = 56)
Theme | Subtheme | Quotes |
---|---|---|
Q1. Modifications to the patient letter template | ||
Rewording the patient letter template | “Prefer my own wording in some places.” | |
Tailoring the patient letter template to their practice | Modifications undertaken to tailor patient letter template to their practice | “Adding logo and contact information” |
Incorporating parts of patient letter template into existing letter already used in practice | “Will take some sentences/sections to include in our own VUS letter to patient.” | |
Adding information about length of time patients should take to recontact the practice for updates | “Have patient call us in 2 years.” | |
Tailoring the patient letter template to the patient | Tailoring patient letter template to the specific needs of their patient | “Tailor for each patient with management recommendations.” |
Including information geared toward family members of the patient | “Might make slight changes to include information regarding family studies programs offered by some labs.” | |
Q2. Additional VUS patient education materials to use in practice | ||
Additional patient information | Desire for additional patient-oriented information or materials | “Explaining a VUS during the initial GC consultation.” |
Visual aids | “Visual aid: normal sequence vs mutation.” | |
Shortened or brief versions of the patient educational materials | “I would like if the booklet was just a little shorter!” | |
Additional genetic counselor/provider materials | Additional materials for other genetic counselors or providers | “Letter for referring physician.” |
Access to online resources or databases | “List websites to check variant status.” |