Skip to main content
. 2017 Nov 9;9(3):209–215. doi: 10.1007/s12687-017-0343-3

Table 2.

Postcard qualitative summary of open-ended responses (n = 56)

Theme Subtheme Quotes
Q1. Modifications to the patient letter template
 Rewording the patient letter template “Prefer my own wording in some places.”
 Tailoring the patient letter template to their practice Modifications undertaken to tailor patient letter template to their practice “Adding logo and contact information”
Incorporating parts of patient letter template into existing letter already used in practice “Will take some sentences/sections to include in our own VUS letter to patient.”
Adding information about length of time patients should take to recontact the practice for updates “Have patient call us in 2 years.”
 Tailoring the patient letter template to the patient Tailoring patient letter template to the specific needs of their patient “Tailor for each patient with management recommendations.”
Including information geared toward family members of the patient “Might make slight changes to include information regarding family studies programs offered by some labs.”
Q2. Additional VUS patient education materials to use in practice
 Additional patient information Desire for additional patient-oriented information or materials “Explaining a VUS during the initial GC consultation.”
Visual aids “Visual aid: normal sequence vs mutation.”
Shortened or brief versions of the patient educational materials “I would like if the booklet was just a little shorter!”
 Additional genetic counselor/provider materials Additional materials for other genetic counselors or providers “Letter for referring physician.”
Access to online resources or databases “List websites to check variant status.”