Table 1.
Characteristics of Survey Respondents Grouped by Organ System Involvement
| All Patients | Ear/nose Involvement | Airway Involvement | Joint Involvement | |
|---|---|---|---|---|
| n=304 | n=287 | n=225 | n=250 | |
| Age mean (SD) | 48 (11.2) | 49 (11) | 47.9 (13) | 47.4 (12.9) |
| Age at diagnosis mean (SD) | 42 (12.2) | 43.6 (11.9) | 43.9 (12.2) | 43.2 (12.1) |
| Gender | n (%) | n (%) | n (%) | n (%) |
| Female | 263 (87) | 253 (88) | 197 (87) | 230 (92) |
| Race | n (%) | n (%) | n (%) | n (%) |
| White | 268 (88) | 255 (89) | 203 (90) | 222 (89) |
| Hispanic | 15 (5) | 13 (4) | 8 (3) | 10 (4) |
| Other | 13 (4) | 11 (4) | 6 (2) | 7 (3) |
| More than one | 8 (3) | 8 (3) | 8 (3) | 11 (4) |
| Country of origin | n (%) | n (%) | n (%) | n (%) |
| United States | 222 (73) | 205 (71) | 173 (77) | 186 (74) |
| Canada | 13 (4) | 11 (4) | 8 (4) | 10 (4) |
| Latin America | 4 (1) | 4 (1) | 2 (1) | 2 (1) |
| Central America | 7 (2) | 3 (1) | 4 (2) | 3 (1) |
| Europe | 52 (17) | 49 (17) | 31 (14) | 44 (18) |