Table 3.
Major domains identified in focus groups with women with asthma about what encompasses perceptions financial burden.
Domain | Descriptors | Example |
---|---|---|
High out-of-pocket expenses | Medicines (especially related to asthma), environmental control and urgent care use contribute to high out-of-pocket expenses | “…And when you’re an asthmatic, you’re often times prescribed Advair, you have to use it monthly, 30 days. So, that’s 300-plus dollars a month…in my experience, as a sole practitioner, I had an individual insurance plan that only covered $2500 worth of, um, pharmaceuticals. Within the first three months of having that, I used up the $2500 because I had to have four inhalers, with the average cost being about $250. So, in one year, I spent on medication for asthma, out of pocket, $5720. Out of pocket, to breathe.” |
Lost wages | Asthma exacerbations require recovery time that use up paid sick days from work very quickly and contribute to difficulties in maintaining stable employment | “Yeah, it cuts into that time. When I have an asthma attack, I’m off from work for two or three days for sure. It ain’t no go to the hospital – and then go to work tomorrow. That don’t happen. It’s a – you know, you’re gonna be off for a couple of days.” |
Distance to health-related resources | Affordable urgent care facilities and administrative offices to ensure government-sponsored health insurance are often far and the time and gas required are described as expensive | So, it’s hard for me right now to have to deal with social services, case workers and paperwork. It’s so expensive, and I have to drive all the way to [town in sample region] and drive back. It’s just hard, you know, dealing with all of that. |
Managing health insurance | Comprehensiveness of coverage, uncertainty with maintaining insurance coverage in a volatile economic climate and false bills contribute to access difficulties with the resources people need to manage their asthma and health | “they’ll still try to run out and bill you. Then I’m like, “where did this come from? I got Medicaid. You know?” So, you still have to deal and keep up with your stuff. I still have a lot of bills, even though I have Medicaid, I still have a lot of bills. I call them and try to straighten it out, but then they get, they don’t even—And then that’s time, on the phone all day – and they all, “hold on. I got to get you to such-and-such.” Then you talk to such-and-such. Such-and-such can’t help you. You – and next thing you know, you on the phone back and forth for two hours about a medication or a bill that you shouldn’t have even been billed for.” |