Table 2.

Monitoring parameters for patients with juvenile dermatomyositis

Statement	Consensus
Disease monitoring tools	100%
In order to monitor disease activity and disease damage over time, the regular measurement of the following parameters may be useful (initially every 6 weeks, later every 3 months): • Length, weight, blood pressure • Physician global assessment of disease activity (visual analog scale 0–10) • Parent/Patient global assessment of disease activity (visual analog 0–10) • Manual muscle testing (MMT)8 and/or Childhood Myositis Assessment Scale (CMAS) • Childhood Health Assessment Questionnaire (CHAQ) • A validated Quality of life instrument • Muscle enzymes • Extramuscular disease activity, e.g. via Disease Activity Score, Myositis Disease Activity Assessment Tool or Visual Analog Scale • Myositis damage index (annually)