Table 2.
Items retained at the end of round 1
| Item description | % rating 7–9 | % rating 1–3 | Median (IQR) | Inclusion reason |
|---|---|---|---|---|
| Hospital care | ||||
| (1) Number of hospital admissions (inpatient stay or day case) | 95.56 | 0.00 | 9 (9–9) | Consensus |
| (2) Number of hospital outpatient appointments | 91.11 | 2.22 | 9 (8–9) | Consensus |
| (3) Length of stay (e.g., dates or number of nights) | 84.44 | 0.00 | 9 (8–9) | Consensus |
| (4) Number of operations/procedures undergone | 64.44 | 4.44 | 8 (6–9) | Consensus |
| (5) Type of operation/procedure undergone | 64.44 | 4.44 | 8 (6–9) | Consensus |
| (6) Type of professional seen (e.g., consultant/nurse) | 53.33 | 13.33 | 7 (5–8) | Consensus |
| (7) Number of imaging scans undergone (e.g., x-ray/MRI) | 42.22 | 13.33 | 6 (5–8) | Top 10* |
| (8) Type of ward stayed in | 37.78 | 11.11 | 6 (5–8) | Top 10* |
| Emergency care | ||||
| (9) Number of visits to A&E | 91.11 | 0.00 | 9 (7–9) | Consensus |
| (10) Number of admissions to hospital, after A&E | 80.00 | 2.22 | 9 (7–9) | Consensus |
| (11) Number of times paramedic care received | 53.33 | 4.44 | 7 (5–9) | Consensus |
| Care at a GP surgery or health clinic | ||||
| (12) Number of appointments at a GP surgery or health clinic | 95.56 | 2.22 | 9 (9–9) | Consensus |
| (13) Type of professional seen (e.g., GP/nurse/counselor) | 80.00 | 0.00 | 9 (7–9) | Consensus |
| (14) Number of minor surgery/procedures/treatments undergone | 46.67 | 6.67 | 6 (5–9) | Subgroup† |
| Care at home | ||||
| (15) Number of health care or social care professional visits at home (e.g., health visitor/GP) | 86.67 | 2.22 | 9 (8–9) | Consensus |
| (16) Type of professional seen at home | 80.00 | 0.00 | 9 (7–9) | Consensus |
| (17) Number of professional visits for help with daily activities (e.g., washing/dressing) | 55.56 | 6.67 | 7 (5–9) | Consensus |
| (18) Equipment (e.g., wheelchairs/portable oxygen/specialist clothing) or home adaptation (e.g., grab rails/ramp) supplied | 44.44 | 13.33 | 6 (5–8) | Close‡ |
| Remote access care | ||||
| (19) Number of real-time telephone/computer contacts with health or social care professional (e.g., with GP or telephone helpline) | 68.89 | 4.44 | 7 (6–9) | Consensus |
| (20) Type of professional contacted (e.g., doctor/nurse/social worker) | 53.33 | 6.67 | 7 (5–9) | Consensus |
| Other community care | ||||
| (21) Number of visits to health care professional in the community (e.g., dentist, pharmacist, nurse, counselor, and therapist) | 80.00 | 2.22 | 9 (7–9) | Consensus |
| (22) Number of visits to social care professional in the community (e.g., social worker/housing worker/drug and alcohol worker) | 75.56 | 2.22 | 9 (7–9) | Consensus |
| (23) Type of health care professional seen | 71.11 | 4.44 | 8 (5–9) | Consensus |
| (24) Type of social care professional seen in the community | 62.22 | 4.44 | 8 (5–9) | Consensus |
| Residential care | ||||
| (25) Stay in hospice | 77.78 | 6.67 | 9 (7–9) | Consensus |
| (26) Length of time spent in the hospice | 75.56 | 8.89 | 8 (7–9) | Consensus |
| (27) Use of short-term respite or rehabilitation care | 66.67 | 6.67 | 7 (5–9) | Consensus |
| (28) Length of stay in short-term respite or rehabilitation care | 62.22 | 8.89 | 7 (5–9) | Consensus |
| (29) Living in a nursing home | 53.33 | 11.11 | 7 (5–9) | Consensus |
| (30) Living in a residential home | 48.89 | 11.11 | 6 (5–9) | Subgroup† |
| (31) Living in supported accommodation/sheltered housing | 46.67 | 11.11 | 6 (5–9) | Subgroup† |
| Medication | ||||
| (32) Number of prescribed medications | 68.89 | 6.67 | 8 (5–9) | Consensus |
| (33) Name of medication | 64.44 | 4.44 | 8 (5–9) | Consensus |
| (34) Period taken for (e.g., dates or number of days) | 46.67 | 11.11 | 6 (5–9) | Subgroup† |
A&E, accident and emergency; GP, general practitioner; IQR, interquartile range; MRI, magnetic resonance imaging.
⁎
Item included because >15% of participants listed it in their “top 10” choices.
†
Item included because >1 subgroup rated it highly.
‡
Item included because it came close to meeting several criteria.