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. 2018 Jun 28;19:344. doi: 10.1186/s13063-018-2686-4

Table 3.

Timing and measures

Measure Citation Scale information Time 1 (pre-decision baseline, phase 1) Time 2 (post-decision, phase 1 or 2a) Time 2A (post-additional information decision,bphase 2) Time 3 (short-term follow-up) Time 4 (long-term follow-up)
Sociodemographic variables X
Health literacy [32] 1 item
Likert scale
X
Personal and family history of genetic testing 5 items
Yes/no
X
Knowledge of genomic sequencing [38] 19 items
True/ false
X X X
Understanding NC NEXUS 5 items
True/false
X
General depression and anxiety [43] 14 items
Likert scales
X X X
Decisional conflict [44] 16 items
Likert scale
X X
Decision regret [45] 5 items
Likert scale
X X
Decision regret for additional informationc Adapted from [45] 6 items
Likert scale
X X
Dyadic decision-making conflict 9 items
Likert scale
X X
Test-related distress [46] 17 items
Likert scale
X X

aThe time 2 questionnaire is administered in phase 1 for participants who decline NGS-NBS in the decision aid and in phase 2 for those who indicate interest in NGS-NBS in the decision aid by selecting accept or undecided

bThis questionnaire is completed by decision arm participants after they decide to learn all, some, or none of the three categories of additional information

c Relevant to decision arm participants only