Table 1.

Demographics.

	Study Author (Date)	Methods	Sample	Ethnicity
1.	Dekking et al (2016)18	Focus groups; semistructured in-depth interviews	16 pediatric oncologists 4 research ethics committee members 3 research coordinators 17 parents of children with cancer 5 adolescents with cancer	the Netherlands (Dutch)
2.	Byrne-Davis et al (2010)8	Collection of audio-recordings of consultations between pediatric oncologists and parents to obtain informed consent for clinical trials; semistructured interviews of parents	20 consultations 30 parents (17 mothers and 13 fathers)	United States
3.	Dekking et al (2015)13	Focus groups; Semistructured, in-depth interviews	35 respondents 16 pediatric oncologists 14 parents 2 adolescents 3 research coordinators	the Netherlands
4.	Kupst et al (2003)11	Semistructured interview	20 parents of newly diagnosed children	United States
5.	Levi et al (2000)12	Focus groups	22 parents of children with cancer	United States
6.	Oppenheim et al (2005)14	Interview	1 mother	France
7.	Stevens et al (2002)15	Qualitative study: interview	12 mothers	United States
8.	Bartholdson et al (2015)16	Qualitative analysis of open-ended questions in a questionnaire	86 doctors, nurses, and nursing aides	Sweden
9.	Eiser et al (2015)10	Interviews	50 mothers of children newly diagnosed with cancer	United Kingdom
10.	Chappuy et al (2010)9	Semidirected interview at 1 and 6 months after consent was sought	First interview: 37 mothers and 14 fathers Second interview: 29 mothers and 10 fathers	France
11.	Chappuy et al (2013)4	Semidirected interview in response to standardized questions	40 parents	France
12.	Deatrick et al (2002)17	Interviews	First interview: 39 English-speaking parents of children Second interview: 52 parents, 10 adolescents, and 22 physicians	United States
13.	De Vries et al (2010)5	In-depth, semistructured interviews	15 pediatric hematooncologists	the Netherlands