Table 2.
Site characteristics related to disclosure of HIV status to HIV‐infected children and adolescents in the paediatric IeDEA consortium by region (N = 180 sites)
| Asia (N = 16) | Latin America (N = 7) | Central Africa (N = 18) | East Africa (N = 33) | Southern Africa (N = 95) | West Africa (N = 11) | Total | |
|---|---|---|---|---|---|---|---|
| Site characteristics | N (%) | N (%) | N (%) | N (%) | N (%) | N (%) | N (%) |
| Disclosure counselling | 16 (100) | 6 (86) | 18 (100) | 31 (94) | 95 (100) | 11 (100) | 177 (98) |
| Staff members' training on disclosure | 15 (94) | 6 (86) | 13 (72) | 24 (73) | 91 (96) | 10 (91) | 159 (88) |
| Disclosure protocol | 9 (56) | 5 (71) | 10 (56) | 11 (33) | 13 (14) | 5 (45) | 53 (29) |
| Years since a protocol has been initiated; median (IQR) | 4.6 (3.5 to 6.0) | 11.3 (10.3 to 12.2) | 5.7 (2.7 to 5.7) | 1.3 (1.2 to 2.9) | 4.6 (2.5 to 6.7) | 6.1 (5.6 to 7.6) | 4.6 (1.4 to 7.1) |
| Collection of disclosure status | 13 (81) | 4 (57) | 9 (50) | 23 (70) | 84 (88) | 10 (91) | 143 (79) |
| Disclosure status collection method | |||||||
| Interview with caregiver | 2 (15) | 3 (75) | 2 (22) | 6 (26) | 2 (2) | 1 (10) | 16 (11) |
| Interview with child | 5 (22) | 5 (4) | |||||
| Interview with caregiver and child | 11 (85) | 1 (25) | 7 (78) | 12 (52) | 82 (98) | 9 (90) | 122 (85) |
| Frequency | |||||||
| Every month | 1 (8) | 2 (50) | 6 (67) | 22 (96) | 2 (2.5) | 4 (45) | 37 (26) |
| Every three months | 4 (31) | 1 (25) | 2 (22) | 79 (94) | 3 (33) | 89 (63) | |
| Every six months | 4 (31) | 1 (1) | 5 (3) | ||||
| Once a year | 2 (15) | 1 (25) | 1 (11) | 4 (3) | |||
| Other | 2 (15) | 1 (4) | 2 (2.5) | 2 (22) | 7 (5) | ||
| Disclosure status data stored electronically | 5 (38) | 2 (50) | 2 (22) | 11 (48) | 79 (94) | 3 (30) | 102 (71) |
| Estimated percentage of children knowing their HIV status by the age of 14 Median (Interquartile Range) | 83 (75 to 95) | 95 (20 to 100) | 87 (75 to 95) | 70 (30 to 90) | 80 (80 to 80) | 50 (10 to 70) | 80 (75 to 80) |