Table 5.

Goal 5 and recommendations

Optimise Quality and Inclusivity of Health and Social Care systems That Support People Affected by Dementia

1. Evaluate health and social care dementia services from prediagnosis to end of life:

• Monitor the flow of people through care systems, considering unmet needs for people with dementia, families, services, and care systems to identify evidence gaps and future research priorities.

• Understand how services adapt to changes in external environment and individuals' needs.

2. Identify how best to support people affected by dementia to access services and secure the necessary funding

• Understand the funding streams and structures that are available in the commissioning and purchasing of dementia services and support

• Improve the way in which quality of dementia care is measured and communicated to provide assurance to carers and families

• Understand the level to which care is self‐funded, and the quality and value of care that people who pay for the services themselves receive.

3. Understand variations in the types, quality, and costs of care that people affected by dementia receive. Research should include seldom heard populations, such as minority groups and those who do not have family support.

4. Identify effective models of end‐of‐life care for people with dementia, taking into account that people may die with dementia before reaching the severe stages.

5. Develop and test innovative models of support that coordinate health and social care together with community‐based support, care homes, housing, and voluntary sector services.