Table 3.
PROM (Author, Year) | Total sample size | PSC sample size | Domains | Test retest reliability (Pearson Correlation) | Internal consistency (Cronbach’s Alpha) |
---|---|---|---|---|---|
NIDDK-QA (Kim, 2000) | 96 | 17 | Liver symptoms men women | 0.94 | Men = 0.94, women =0.87 |
Physical function | 0.99 | 0.88 | |||
Health satisfaction | 0.82 | NR | |||
Overall well being | 0.83 | 0.91 | |||
Time interval of 2 weeks | |||||
NIDDK-QA (Gross, 1999) | 157 | 92 | Symptoms | NR | 0.81 & 0.85 |
Functioning | NR | 0.82 & 0.88 | |||
Index of General Affect (IGA) | NR | 0.91 & 0.93 | |||
PSC PROM (Younossi, 2017) | 102 | Test retest n = 53 Internal consistency n = 155 | PSC Symptoms | 0.84 | 0.89 |
Physical Function | 0.83 | 0.91 | |||
Activities of Daily Living | 0.85 | 0.86 | |||
Work Productivity | 0.7 | 0.93 | |||
Role Function | 0.83 | 0.91 | |||
Emotional Impact | 0.82 | 0.91 | |||
Social/Leisure Impact | 0.8 | 0.93 | |||
Quality of Life | 0.79 | 0.94 | |||
Total Impact of Symptoms | 0.88 |
NIDDK-QA National institute of diabetes and digestive and kidney disease liver transplant questionnaire, PSC PRO Primary Sclerosing Cholangitis Patient Reported Outcome