Table 2.
Sociodemographic data, health status and satisfaction with care of the study participants responding to the CSQ-4 (n = 948; %)
| Variable | Categories | Turner syndrome (TS) | Klinefelter syndrome (KS) | Congenital adrenal hyperplasia (CAH) | Female XY-DSD | Male XY-DSD | Total |
|---|---|---|---|---|---|---|---|
| Age | p50 [p25; p75] | 29 [21; 43] | 37 [27; 51] | 29 [21, 38] | 26.5 [21; 36.5] | 22 [18; 29] | 29 [21; 41] |
| Education | Low | 40 (15.33) | 53 (30.64) | 40 (21.05) | 29 (16.67) | 26 (31.33) | 188 (21.34) |
| Medium | 130 (49.81) | 94 (54.34) | 100 (52.63) | 76 (43.68) | 36 (43.37) | 436 (49.49) | |
| High | 91 (34.87) | 26 (15.03) | 50 (26.32) | 69 (39.66) | 21 (25.30) | 257 (29.17) | |
| Feeling about household income | Finding it (very) difficult to live on present income | 35 (14.29) | 29 (17.26) | 30 (16.22) | 19 (11.11) | 8 (14.04) | 121 (14.65) |
| Coping with present income | 113 (46.12) | 83 (49.40) | 78 (42.16) | 73 (42.69) | 31 (54.39) | 378 (45.76) | |
| Living comfortably on present income | 97 (39.59) | 56 (33.33) | 77 (41.62) | 79 (46.20) | 18 (31.58) | 327 (39.59) | |
| Health status | Very bad | 1 (0.36) | 4 (1.9) | 4 (1.9) | 3 (1.63) | 0 (0) | 12 (1.27) |
| Bad | 8 (2.87) | 22 (11.64) | 11 (5.21) | 11 (5.98) | 13 (15.29) | 65 (6.86) | |
| Fair | 80 (28.67) | 61 (32.28) | 62 (29.38) | 45 (24.46) | 23 (27.06) | 271 (28.59) | |
| Good | 167 (59.86) | 85 (44.97) | 102 (48.34) | 90 (48.91) | 36 (42.35) | 480 (50.63) | |
| Very good | 23 (8.24) | 17 (8.99) | 32 (15.17) | 35 (19.02) | 13 (15.29) | 120 (12.66) | |
| Satisfaction with care | CSQ4 p50 [p25; p75] | 14 (12; 15) | 13 (11; 15) | 14 (12; 15) | 13 (11; 15) | 13 (11; 15) | 13 (12; 15) |
| YHC-SF total satisfaction | 56 (47; 75) | 53 (42; 75) | 61 (50; 83) | 58 (42; 81) | 53 (47; 75) | 56 (47; 75) | |
| YHC-SF info satisfaction | 50 (50; 75) | 50 (33; 75) | 58 (50; 75) | 50 (38; 75) | 50 (33; 75) | 50 (42; 75) | |
| YHC-SF care satisfaction | 50 (50; 75) | 50 (42; 75) | 58 (50; 83) | 58 (42; 83) | 50 (50; 75) | 50 (50; 75) | |
| YHC-SF doctor satisfaction | 58 (50; 75) | 58 (50; 75) | 75 (50; 92) | 67 (50; 83) | 67 (50; 83) | 67 (50; 83) |
Differences between diagnostic groups: age (Test for difference in median) p = 0.000; education (Pearson chi2 (8) = 42.3919), Pr = 0.000; income (Pearson chi2(8) = 9.5527), Pr = 0.298; general health (Pearson chi2(16) = 50.6480) Pr = 0.000; global satisfaction with care CSQ4 (Test for difference in median) p = 0.022; YHC-SF total satisfaction p = 0.209; YHC-SF info satisfaction p = 0.189; YHC-SF care satisfaction p = 0.049; YHC-SF doctor satisfaction p = 0.265