Table 3.
Findings from Results Disclosure Sessions
| Cardiology Cohort (n = 102) | Primary Care Cohort (n= 100) | Total Sample (n = 202) | ||||
|---|---|---|---|---|---|---|
| WGS + FH (n=50) | FH− only (n=52) | WGS + FH (n=50) | FH− only (n=50) | WGS + FH | FH-only | |
| Satisfaction with communication | Median values on a 6-pt scale (IQR) | |||||
| How satisfied are you overall with how your doctor communicated with you? | 6 (0) | 6 (0) | 6 (0) | 6 (0) | 6 (0) | 6 (0) |
| How satisfied are you with how well you understand the information you just discussed with your doctor? | 6 (1) | 6 (0) | 6 (1) | 6 (0) | 6 (1) | 6 (0) |
| How well was your doctor able to explain new information and its meaning in a way you could understand? | 6 (0) | 6 (0) | 6 (0) | 6 (0) | 6 (0) | 6 (0) |
| How confident are you that you could fully explain the meaning of the info you just discussed to a family member? | 5 (1) | 6 (1) | 5 (1) | 6 (0) | 5 (1) | 6 (0.5) |
| How comfortable were you in asking your doctor questions about the information you just discussed? | 6 (0) | 6 (0) | 6 (1) | 6 (0) | 6 (0) | 6 (0) |
| Perceptions of results | % of respondents endorsing | |||||
| How much new information did you receive from your results? (% endorsing ‘a lot’) | 58% | 5% | 42% | 5% | 51% | 5% |
| How well do you think you understood your results? (% endorsing ‘extremely’) | 18% | 40% | 35% | 62% | 26% | 51% |
| How would you rate the overall amount of information you received? (% endorsing ‘too much’) | 8% | 9% | 29% | 9% | 19% | 9% |
| Average length of results disclosure session, minutes** | 24.2 | 13.6 | 35.8 | 17.0 | 30.1 | 15.2 |
*
Primary care cohort participants more likely to endorse “too much” information, p < .05
**
Primary care sessions longer than cardiology; WGS arm longer than FH-only arm; p < .001