Table 1.
Assessments | Domains of interest | Relevance/intervention | |
---|---|---|---|
INFANCY | |||
0–2 years | Growth Kidney function Hearing assessment Neurologic assessment including imaging Mental development Motor development | Hypertension, urinary protein-to-creatinine ratio MRI brain | Referral dietician Referral nephrologist (CKD) Early referral audiology Early recognition, rehabilitation Early referral Referral physical therapist |
PRESCHOOL AGE | |||
2–5 years | Growth (mainly CDH) Kidney function Neurologic assessment Language development Motor development | Hypertension, urinary protein-to-creatinine ratio | Referral dietician Referral nephrologist (CKD) Rehabilitation Hearing assessment, referral speech-language pathologist Referral physical therapist |
SCHOOL AGE | |||
≥6 years | Growth (mainly CDH) Kidney function Lung function assessment Motor development Exercise capacity Neuropsychological assessment Behavior assessment | Hypertension, urinary protein-to-creatinine ratio Spirometry Intelligence (only once in follow-up) Memory Attention/concentration/information-processing Hyperactivity Somatic problems | Referral dietician Referral nephrologist (CKD) Evaluate reversibility of airflow obstruction Referral physical therapist Sports participation and/or exercise training Referral to early school support Referral to cognitive rehabilitation Referral to support/guidance |
ADOLESCENCE | |||
>12 years | Growth (mainly CDH) Kidney function Motor function Exercise capacity Neuropsychological assessment Behavior assessment | Hypertension, urinary protein-to-creatinine ratio Gross motor function (e.g., ball skills) Memory Attention/concentration/information processing Hyperactivity Depressed feelings/social problems Somatic problems | Referral dietician Referral nephrologist (CKD) Referral physical therapist/sports participation Sports participation/exercise training Referral to school support Career support/choice of profession Referral to cognitive rehabilitation Referral to support/guidance |
ECMO, extracorporeal membrane oxygenation; CKD, chronic kidney disease; CDH, congenital diaphragmatic hernia.