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. 2018 Jul 9;18:225. doi: 10.1186/s12887-018-1200-1

Table 2.

Variable Domains

Variable Domains Parents Physicians
Baseline Post-Disclosure 3-Mo 10-Mo Baseline Post-Disclosure End of Study
Attitudes X X X X
Confidence X X X X X
Perceived Utility X X X X X X
Genetic Perception X X X X
Sociodemographics X X
Healthcare Utilization X
Report Utilization X
Information Seeking X
Preparedness & Interest X X
Parent-Child Relationship X X X X
Personal Distress (Depression/Anxiety) X X X X
Child-Centered Stress X X
Partner Relationship X X X X
Perceptions of Child X X X X
Health Behaviors & Intentions X X X X
Social Support X X
World View X X X
Health History X
Trust X
Satisfaction X X X
Understanding & Recall X