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Demographic data of children with metabolic diseases (n = 29)
| Children with metabolic diseases | |
|---|---|
| No. | 29 |
| Gender, male (%) | 13 (44.8%) |
| Age at referral, median (range in years) | 2.6 (0–24.1) |
| Age at death, median (range in years) | 3.4 (0.1–26.7) |
| Duration of palliative care, median (range in days) | 352 (3–2248) |
| Home visits, median (range in no.) | 13 (1–80) |
| Deceased children | 13 (44.8%) |
| Place of death, n (%) | |
| At home | 4 (30.8%) |
| In hospice | 1 (7.7%) |
| In hospital (not ICU) | 1 (7.7%) |
| ICU | 7 (53.8%) |
