Table 1.

The 6 templates created to address return of research results to family.

Type of research	Appendix	Template document
Adult research	Appendix A	Adult Participant Statement of Preferences on Return of Results to Family Members and Designation of a Representative
Adult research	Appendix B	Guidance Letter for Representative
Adult or pediatric research	Appendix C	Consent Form for Family Member to Receive Participant’s Research Results
Adult or pediatric research	Appendix D	Letter to Family Member to Share or Confirm Research Results
Pediatric research	Appendix E	Guidance for Parents/Guardian Considering Family Access to Child’s Research Results
Pediatric research	Appendix F	Child/Adolescent Participant Statement of Preferences on Return of Results to Family Members