TABLE 1.
Baseline child and family characteristics of long-term follow-up survey (T3) respondents (N = 52)
| Frequency (%) or Median (p25, p75) | |
|---|---|
| Parental demographics at baseline | |
|
| |
| Parent completing survey: mother | 32 (62) |
|
| |
| Parent age | 39.3 (33.7, 46.2) |
|
| |
| Education | |
| High school education or less | 9 (17) |
| Associate/bachelors | 24 (46) |
| Masters/doctorate | 19 (37) |
|
| |
| Ethnicity: Hispanic or Latino | 2 (4) |
|
| |
| Race: non-White | 10 (19) |
|
| |
| Household characteristics at baseline | |
|
| |
| English as primary language | 50 (96) |
|
| |
| Single parent household | 7 (14) |
|
| |
| Household size | 4 (4, 5) |
|
| |
| Distance of home from DFCI (miles) | |
| 0–50 | 40 (77) |
| 50+ | 12 (23) |
|
| |
| Household income at diagnosis (dollars) | 101,012 (72,690, 182,500) |
|
| |
| Any parent in household unemployed at diagnosis (excluding stay at home parents) | 2 (4) |
|
| |
| Child, disease, and care characteristics | |
|
| |
| Female | 32 (62) |
|
| |
| Age at diagnosis | 5.5 (3, 12) |
|
| |
| Cancer diagnosis | |
| Hematologic malignancy | 28 (54) |
| Solid tumor | 15 (29) |
| Brain tumor | 9 (17) |
|
| |
| Health insurance | |
| Private ± Masshealth/Medicaid | 43 (83) |
| Medicaid/MassHealth only | 9 (17) |
| Uninsured | 0 (0) |
p25, p75: 25th percentile, 75th percentile.