Table 1:
Examples | |
---|---|
Social status / integration | Concern about socializing and befriending PWE Concern about close physical proximity (afraid to sit beside a PWE) PWE should be isolated PWE cannot have normal social roles / should not participate in social activities Objection to marriage for PWE Concern about PWE having children Concern about children with epilepsy associating with other children and attending regular school Concern that children with epilepsy may not succeed in life Perception that PWE may not be successful in specific professions Perception that epilepsy is more common in a lower socio-economic class / Religious people have lower risk of epilepsy PWE are responsible for their condition Idea that one can identify a PWE by appearance PWE may transmit the disease ( i.e. epilepsy is contagious) PWE are a danger to the public Being a PWE is a disgraceful condition |
Employment | Concern about hiring PWE Co-workers’ concern about working with PWE Associate negative features to PWE as employees Concern for safety of PWE and others in the workplace |
Associated Conditions (primarily cognitive and psychiatric) | PWE have poor cognitive capacity / lower IQ / are mentally retarded Children with epilepsy (CWE) almost always have mental or learning problems -and usually cannot be very good students PWE have impaired self-realization/lower self-confidence PWE have difficult personalities; aggressiveness, violence and behavioral disorders PWE have severe psychiatric disease PWE tend to develop and express criminal tendencies |
Restrictions and limitations | PWE cannot work or number of suitable jobs for PWE is low PWE should not drive, operate heavy machinery PWE should not attend regular school PWE cannot participate in sports |
Cause/nature of epilepsy | Excessive suffering in childhood Epilepsy is a blood disease / immune disease Epilepsy is a physical deficiency / sign of weakness Epilepsy is a form of madness or a mental disorder Epilepsy is caused by possession or a “spell” /supernatural disease/the devil/ moon cycles Epilepsy is punishment for past sins/past life PWE are fated by God to have epilepsy Is caused by bad thoughts, depression Epilepsy is a disease that can kill PWE have lower life expectancy |
Treatment | PWE can be treated better in institutions Epilepsy drugs have to be taken for life Most PWE do not take epileptic drugs Epilepsy is not curable or controllable Treatments are teas and medicinal herbs Faith can heal epilepsy/ask for God’s help/talismans/prayers Acupuncture Herbal medicine doctor/healer |
First aid for seizures | Smelling something strong can end a seizure / spread vinegar or alcohol on patient’s wrist PWE can swallow their tongue during a seizure, therefore try to pull out the tongue Place something between their teeth Hold the person down/try to contain, throw water at them Necessity for immediate medical intervention in the form of an ambulance crew to stop a seizure |