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. Author manuscript; available in PMC: 2018 Jul 16.
Published in final edited form as: Epilepsy Behav. 2016 May 18;60:165–173. doi: 10.1016/j.yebeh.2016.04.003

Table 1:

Misconceptions categories identified in studies on epilepsy

Examples
Social status / integration  Concern about socializing and befriending PWE
 Concern about close physical proximity (afraid to sit beside a PWE)
 PWE should be isolated
 PWE cannot have normal social roles / should not participate in social activities
 Objection to marriage for PWE
 Concern about PWE having children
 Concern about children with epilepsy associating with other children and attending regular school
 Concern that children with epilepsy may not succeed in life
 Perception that PWE may not be successful in specific professions
 Perception that epilepsy is more common in a lower socio-economic class / Religious people have lower risk of epilepsy
 PWE are responsible for their condition
 Idea that one can identify a PWE by appearance
 PWE may transmit the disease ( i.e. epilepsy is contagious)
 PWE are a danger to the public
 Being a PWE is a disgraceful condition
Employment  Concern about hiring PWE
 Co-workers’ concern about working with PWE
 Associate negative features to PWE as employees
 Concern for safety of PWE and others in the workplace
Associated Conditions (primarily cognitive and psychiatric)  PWE have poor cognitive capacity / lower IQ / are mentally retarded
 Children with epilepsy (CWE) almost always have mental or learning problems -and usually cannot be very good students
 PWE have impaired self-realization/lower self-confidence
 PWE have difficult personalities; aggressiveness, violence and behavioral disorders
 PWE have severe psychiatric disease
 PWE tend to develop and express criminal tendencies
Restrictions and limitations  PWE cannot work or number of suitable jobs for PWE is low
 PWE should not drive, operate heavy machinery
 PWE should not attend regular school
 PWE cannot participate in sports
Cause/nature of epilepsy  Excessive suffering in childhood
 Epilepsy is a blood disease / immune disease
 Epilepsy is a physical deficiency / sign of weakness
 Epilepsy is a form of madness or a mental disorder
 Epilepsy is caused by possession or a “spell” /supernatural disease/the devil/ moon cycles
 Epilepsy is punishment for past sins/past life
 PWE are fated by God to have epilepsy
 Is caused by bad thoughts, depression
 Epilepsy is a disease that can kill
 PWE have lower life expectancy
Treatment  PWE can be treated better in institutions
 Epilepsy drugs have to be taken for life
 Most PWE do not take epileptic drugs
 Epilepsy is not curable or controllable
 Treatments are teas and medicinal herbs
 Faith can heal epilepsy/ask for God’s help/talismans/prayers
 Acupuncture
 Herbal medicine doctor/healer
First aid for seizures  Smelling something strong can end a seizure / spread vinegar or alcohol on patient’s wrist
 PWE can swallow their tongue during a seizure, therefore try to pull out the tongue
 Place something between their teeth
 Hold the person down/try to contain, throw water at them
 Necessity for immediate medical intervention in the form of an ambulance crew to stop a seizure