Table 5. Patient satisfaction survey results (N = 83).

Survey question	Response options	Responses (Number)
Identify the best aspects of the program*	a) Help understanding my medications	a) 20
	b) Help understanding and coping with my disease	b) 19
	c) Having a person to talk to about my disease	c) 39
	d) Improved communication with my rheumatologist	d) 15
	e) Reminders to take my medication	e) 3
	f) Help getting and refilling my medications	f) 5
	g) Help with insurance difficulties	g) 6
	h) Help getting through the health care system	h) 16
	i) Other	i) Other responses included: “hope”, “think about every aspect of my disease and how I improved,” “knowing someone cares about me and is interested in my health,” “follow-up by a real person made me cared for” and “being able to help with research.”
Identify ways in which the intervention could be improved*	a) More frequent calls/emails	a) 10
	b) Less frequent calls/emails	b) 10
	c) More help with understanding my medications	c) 6
	d) More help understanding my disease	d) 10
	e) Help with medications for other diseases	e) 8
	f) Navigator accompaniment to my rheumatology appointments	f) 11
	g) More services to help get through the healthcare system	g) 14

*Respondents could choose more than one option