Table 2.
Answer distribution of the items
| n (%) | Almost Never | Usually not | Sometimes | Mostly | Almost Always | Missing |
|---|---|---|---|---|---|---|
| Asked for my ideas | 29 (19.2) | 9 (6.0) | 48 (31.8) | 18 (11.9) | 43 (28.5) | 4 (2.6) |
| Given choices about treatment | 34 (22.5) | 18 (11.9) | 41 (27.2) | 15 (9.9) | 38 (25.2) | 5 (3.3) |
| Asked to talk about problems | 17 (11.3) | 6 (4.0) | 43 (28.5) | 24 (15.9) | 58 (38.4) | 3 (2.0) |
| Given a written list | 12 (7.9) | 6 (4.0) | 28 (18.5) | 37 (24.5) | 57 (37.7) | 11 (7.3) |
| My care was well organized. | 3 (2.0) | 3 (2.0) | 19 (12.6) | 60 (39.7) | 65 (43.0) | 1 (0.7) |
| Shown how what I influenced my condition. | 6 (4.0) | 7 (4.6) | 21 (13.9) | 56 (37.1) | 55 (36.4) | 6 (4.0) |
| Asked to talk about my goals | 9 (6.0) | 12 (7.9) | 30 (19.9) | 39 (25.8) | 57 (37.7) | 4 (2.6) |
| Helped to set specific goals | 5 (3.3) | 8 (5.3) | 29 (19.2) | 42 (27.8) | 64 (42.4) | 3 (2.0) |
| Given a copy of my treatment plan. | 36 (23.8) | 23 (15.2) | 33 (21.9) | 17 (11.3) | 33 (21.9) | 9 (6.0) |
| Encouraged to go to a specific group | 55 (36.4) | 33 (21.9) | 30 (19.9) | 12 (7.9) | 13 (8.6) | 8 (5.3) |
| Asked about my health habits. | 8 (5.3) | 7 (4.6) | 38 (25.2) | 29 (19.2) | 65 (43.0) | 4 (2.6) |
| my doctor or nurse thought about my values | 10 (6.6) | 10 (6.6) | 26 (17.2) | 53 (35.1) | 50 (33.1) | 2 (1.3) |
| Treatment plan that I could do in my daily life. | 13 (8.6) | 13 (8.6) | 33 (21.9) | 44 (29.1) | 45 (29.8) | 3 (2.0) |
| Plan ahead so I could take care of my illness. | 21(13.9) | 21 (13.9) | 39 (25.8) | 32 (21.2) | 34 (22.5) | 4 (2.6) |
| Asked how my chronic illness affects my life. | 10 (6.6) | 12 (7.9) | 43 (28.5) | 31 (20.5) | 53 (35.1) | 2 (1.3) |
| Contacted after a visit | 42 (27.8) | 25 (16.6) | 34 (22.5) | 15 (9.9) | 28 (18.5) | 7 (4.5) |
| Encouraged to attend programs | 60 (39.7) | 33 (21.9) | 21 (13.9) | 16 (10.6) | 13 (8.6) | 8 (5.3) |
| Referred to a dietitian, health educator, or counselor. | 39 (25.8) | 21 (13.9) | 39 (25.8) | 27 (17.9) | 19 (12.6) | 6 (4.0) |
| Told how my visits with other doctors helped my treatment. | 31 (20.5) | 13 (8.6) | 53 (35.1) | 23 (15.2) | 29 (19.2) | 2 (1.3) |
| Asked how my visits with other doctors were going. | 35 (23.2) | 22 (14.6) | 47 (31.1) | 14 (9.3) | 24 (15.9) | 9 (6.0) |
| Asked what I would like to discuss | 21 (13.9) | 14 (9.3) | 41 (27.2) | 25 (16.6) | 45 (29.8) | 5 (3.3) |
| Asked how my work related to taking care of my illness. | 25 (16.6) | 26 (17.2) | 36 (23.8) | 25 (16.6) | 31 (20.5) | 8 (5.3) |
| Helped to make plans for how to get support | 34 (22.5) | 21 (13.9) | 38 (25.2) | 22 (14.6) | 30 (19.9) | 6 (4.0) |
| Told things I do were for my health. | 5 (3.3) | 3 (2.0) | 27 (17.9) | 46 (30.5) | 69 (45.7) | 1 (0.7) |
| Set a goal together | 28 (18.5) | 24 (15.9) | 33 (21.9) | 37 (24.5) | 25 (16.6) | 4 (2.6) |
| Given a book or monitoring log | 80 (53.0) | 39 (25.8) | 8 (5.3) | 8 (5.3) | 10 (6.6) | 6 (4.0) |