Table 2.
Concordance of patient and caregiver responses to decision control preferences question by patients’ hypothetical cognitive status
Patient responses | Caregiver responses |
Concordance |
||||||
---|---|---|---|---|---|---|---|---|
Patient decision | Patient dominance | Family dominance | Family decision | Missing response | Total | Agreement (%) | Weighted κ | |
Scenario 1: Intact cognition | ||||||||
Patient decision | 33a) | 35 | 20 | 1 | 1 | 90 | 46.48 | 0.319 |
Patientdominance | 23 | 59a) | 36 | 7 | 0 | 125 | ||
Family dominance | 9 | 27 | 65a) | 6 | 1 | 108 | ||
Family decision | 1 | 7 | 18 | 8a) | 0 | 34 | ||
Missing response | 0 | 1 | 0 | 0 | 0 | 1 | ||
Total | 66 | 129 | 139 | 22 | 2 | 358 | ||
Scenario 2: Mild impairment in cognition | ||||||||
Patient decision | 4a) | 12 | 13 | 2 | 1 | 32 | 48.98 | 0.258 |
Patientdominance | 2 | 43a) | 51 | 2 | 5 | 103 | ||
Family dominance | 4 | 36 | 101a) | 17 | 4 | 162 | ||
Family decision | 2 | 6 | 28 | 20a) | 0 | 56 | ||
Missing response | 0 | 0 | 3 | 0 | 2 | 5 | ||
Total | 12 | 97 | 196 | 41 | 12 | 358 | ||
Scenario 3: Severe impairment in cognition | ||||||||
Patient decision | 3a) | 2 | 7 | 3 | 0 | 15 | 60.74 | 0.363 |
Patient dominance | 0 | 7a) | 13 | 7 | 2 | 29 | ||
Family dominance | 3 | 10 | 64a) | 26 | 0 | 103 | ||
Family decision | 0 | 6 | 60 | 138a) | 3 | 207 | ||
Missing response | 0 | 0 | 0 | 3 | 1 | 4 | ||
Total | 6 | 25 | 144 | 177 | 6 | 358 |
Weighted kappa values are statistically significant for all scenarios (p < 0.05).
Agreement between patient and caregiver in the dyads.