TABLE I.
Demographic Information
| Group | MFS (N = 245) |
|---|---|
| Sex (% female) | 73.3% |
| Age in years, mean (range) |
35–44 (18–75) |
| Ethnicity | |
| Non-Hispanic white | 89.3% |
| Asian American | 3.3% |
| African American | 4.1% |
| Other | 3.3% |
| North American resident | 90.2% |
| Employment status (% unemployed) |
43.4% |
| Average years since diagnosis (SD) |
19.9 (15.4) |
| Average number of MFS symptoms a (SD) |
11.7 (5.5) |
SD=standard deviation;
a
MFS symptoms included in survey: aortic dilatation, arachnodactyly, gastroesophageal reflux, bicuspid aortic valve, cysts, cystic medial necrosis, degenerative disc disease, deviated septum, dural ectasia, early cataracts, early glaucoma, early osteoarthritis, ectopic lentis, emphysema, iris coloboma, above average height, heart palpitations, hernias, high palate, joint hypermobility, kyphosis, heart murmur, malocclusion, micrognathia, mitral valve prolapse, myopia, obstructive lung disease, osteopenia, osteoporosis, pectus carinatum/pectus excavatum, pes planus, pneumothorax, retinal detachment, scoliosis, sleep apnea, stretch marks, temporomandibular joint disorder.