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. Author manuscript; available in PMC: 2019 Aug 1.
Published in final edited form as: J Pediatr. 2018 May 10;199:186–193.e3. doi: 10.1016/j.jpeds.2018.03.074
Very capable Capable Somewhat Capable Not At All Capable
Option of comfort care
Outcomes from Intestinal transplantation
Long term quality of life for the child
Long term quality of life for the family
Neurodevelopmental outcomes in intestinal failure
Neurodevelopmental outcomes in prematurity
Risks of parenteral nutrition associated liver disease
Description of the long term care needed in intestinal failure
Likelihood of survival with bowel resection and full medical treatment
Likelihood of patient attaining enteral autonomy (full enteral nutrition) over time