Table 2.
Comparison of How Various Factors Influence Recommendations to Families
| Pediatric Surgeons | Neonatologists | p-value | |
|---|---|---|---|
| My experience with long-term survival of infants with minimal residual small bowel | 0.83 | ||
| Very Important | 165 (52.2%) | 151 (52.4%) | |
| Important | 126 (39.9%) | 107 (37.2%) | |
| Somewhat Important | 21 (6.6%) | 29 (10.1%) | |
| Not at all Important | 4 (1.3%) | 1 (0.3%) | |
| My interpretation of the current literature with regards to long-term outcomes in pediatric short bowel syndrome | 0.17 | ||
| Very Important | 134 (42.4%) | 133 (46.2%) | |
| Important | 147 (46.5%) | 135 (46.9%) | |
| Somewhat Important | 34 (10.8%) | 20 (6.9%) | |
| Not at all Important | 1 (0.3%) | 0 (0%) | |
| Education on current outcomes in intestinal failure from a conference/Grand Rounds | 0.39 | ||
| Very Important | 60 (19.0%) | 48 (16.7%) | |
| Important | 115 (36.4%) | 114 (39.6%) | |
| Somewhat Important | 103 (32.6%) | 71 (24.7%) | |
| Not at all Important | 38 (12.0%) | 55 (19.1%) | |
| My experience with the long-term quality of life in children with short bowel syndrome | <0.001 | ||
| Very Important | 164 (51.9%) | 98 (34.0%) | |
| Important | 127 (40.2%) | 128 (44.4%) | |
| Somewhat Important | 23 (7.2%) | 51 (17.7%) | |
| Not at all Important | 2 (0.6%) | 11 (3.8%) | |
| My view on the potential for success in intestinal transplantation | <0.001 | ||
| Very Important | 113 (35.8%) | 71 (24.7%) | |
| Important | 144 (45.6%) | 133 (46.2%) | |
| Somewhat Important | 46 (14.6%) | 72 (25.0%) | |
| Not at all Important | 13 (4.1%) | 12 (4.2%) | |
| My knowledge of long term neurodevelopmental outcomes of extreme prematurity and/or short bowel syndrome | <0.001 | ||
| Very Important | 115 (36.4%) | 151 (52.4%) | |
| Important | 151 (47.8%) | 110 (38.2%) | |
| Somewhat Important | 44 (13.9%) | 26 (9.0%) | |
| Not at all Important | 6 (1.9%) | 1 (0.3%) | |
| My faith or religion | 0.71 | ||
| Very Important | 15 (4.7%) | 15 (5.2%) | |
| Important | 26 (8.2%) | 21 (7.3%) | |
| Somewhat Important | 46 (14.6%) | 39 (13.5%) | |
| Not at all Important | 229 (72.5%) | 213 (74.0%) | |
| My training | 0.31 | ||
| Very Important | 59 (18.7%) | 51 (17.7%) | |
| Important | 143 (45.3%) | 124 (43.1%) | |
| Somewhat Important | 74 (23.4%) | 63 (21.9%) | |
| Not at all Important | 40 (12.7%) | 50 (17.4%) | |
| The standard of care at my institution | 0.001 | ||
| Very Important | 51 (16.1%) | 53 (18.4%) | |
| Important | 113 (35.8%) | 137 (47.6%) | |
| Somewhat Important | 90 (28.5%) | 71 (24.7%) | |
| Not at all Important | 16 (19.6%) | 27 (9.4%) | |
| The infant’s family/social situation | 0.13 | ||
| Very Important | 64 (20.3%) | 84 (29.2%) | |
| Important | 118 (37.3%) | 84 (29.2%) | |
| Somewhat Important | 68 (21.5%) | 69 (24.0%) | |
| Not at all Important | 66 (20.9%) | 51 (17.7%) | |