Table 7. Research priorities.

Knowledge gap	Perspective	Research activity	Outcomes
A clearer picture of the health and social care needs of YP with CKD as they progress from childhood through adolescence to young adulthood.	Psychological, health-related, vocational, developmental, institutional, and socioecological issues. Accounting for factors such as culture, ethnicity, economic circumstances, health and social care system, mental capacity, family capacity etc.	Qualitative research programme engaging YP with CKD, families, health and social care practitioners. Longer-term evaluation of health and social care outcomes of transitioning YP with CKD	Evidence to inform service development and practice across health and social care.
Effectiveness and outcomes from current health and social care practices including transition readiness and planning; multi-disciplinary working; service configurations; and support programmes.	Practitioner-led within disciplines across health and social care.	Qualitative evaluation and reflections and / or action research examining current practice.	Improvements within individual disciplines and identification of new opportunities for integrated working.
Effectiveness of trialled interventions for YP with CKD in integrated health and social care.	Multi-agency and integrated services including health, social care, education, employment, housing etc.	Longitudinal evaluation or long-term case studies from an integrated health and social care perspective involving YP and their families.	Identification of working practices most effective in transitions and movement towards individual life goals.
Development and trial of new evidence-based, novel transition programmes or components	The health and social care needs of YP with CKD during their transition to adulthood	Evidence-based intervention development Randomised controlled trials. Long term evaluations.	Improved medical and social practice and better outcomes for YP with CKD