Table 2.
Return of results questionnaire
| Disagree* (1 and 2) n (%) |
Neutral (3) n (%) |
Agree (4 and 5) n (%) |
Mean ± SD | |
|---|---|---|---|---|
| 1. Important for families to receive results | 1 (2.3%) | 2 (4.7%) | 40 (93%) | 4.51 ± 0.79 |
| 2. Summary was helpful | 0 (0%) | 3 (7%) | 40 (93%) | 4.51 ± 0.63 |
| 3. Summary was easy to understand | 0 (0%) | 1 (2.3%) | 92 (97.7%) | 4.63 ± 0.54 |
| 4. Summary provided enough detail | 1 (2.3%) | 4 (9.3%) | 38 (88.4%) | 4.28 ± 0.73 |
| 10. Results were surprising | 16 (37.2%) | 16 (37.2%) | 11 (25.6%) | 2.84 ± 0.95 |
| 11. Results were relevant | 2 (4.7%) | 2 (4.7%) | 39 (90.7%) | 4.14 ± 0.71 |
| 19. There are others I can talk to | 5 (11.6%) | 5 (11.6%) | 33 (76.7%) | 3.84 ± 1.15 |
| 20. Interested in cognitive therapy for child | 9 (21%) | 4 (9.3%) | 30 (69.8%) | 3.88 ± 1.28 |
| 21. Interested in cognitive reassessment | 14 (32.5%) | 8 (18.6%) | 21 (48.9%) | 3.3 ± 1.37 |
| 22. Interested in learning more about cognitive late effects | 5 (11.7%) | 2 (4.7%) | 36 (83.7%) | 4.16 ± 1.11 |
| 23. Recommend others participate | 0 (0%) | 1 (2.3%) | 42 (97.7%) | 4.63 ± 0.54 |
*Full scale: 1 = Strongly disagree; 2 = Disagree; 3 = Neutral; 4 = Agree; 5 = Strongly agree; collapsed for analysis
Note that numbers are from survey questions.