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. 2018 Jul 9;4(3):2055217318783352. doi: 10.1177/2055217318783352

Table 1.

Characteristics of MS patients alive in 2013 and identified from the SMSreg and PAR, respectively, and by disability levels/categories for those identified in the SMSreg.


MS patients in SMSreg, by level of disability measured as EDSS
All MS patients identified in SMSreg All individuals with previous MS diagnosis in PAR
0–3.5 4–5.5 6–6.5 7–9.5
n (%) n (%) n (%) n (%) n (%) n (%)
Sex
 Men 1629 (27) 275 (29) 302 (31) 303 (34) 2588 (28) 4548 (30)*
 Women 4481 (73) 673 (71) 659 (69) 584 (66) 6595 (72)* 10,782 (70)
Age groups
 21–24 years old 162 (3) 6 (1) 3 (0.3) 1 (0.1) 189 (2) 326 (2)
 25–29 years old 412 (7) 16 (2) 7 (1) 4 (0.5) 464 (5) 731 (5)
 30–34 years old 699 (11) 33 (3) 19 (2) 14 (2) 803 (9)* 1226 (8)
 35–39 years old 934 (15) 70 (7) 48 (5) 28 (3) 1121 (12)*** 1640 (11)
 40–44 years old 1003 (16) 114 (12) 75 (8) 78 (9) 1326 (14)** 2020 (13)
 45–49 years old 994 (16) 187 (20) 152 (16) 123 (14) 1498 (16) 2421 (16)
 50–54 years old 836 (14) 169 (18) 186 (19) 169 (19) 1388 (15) 2334 (15)
 55–59 years old 623 (10) 176 (19) 222 (23) 222 (25) 1266 (14) 2336 (15)**
 60–64 years old 447 (7) 177 (19) 249 (26) 248 (28) 1128 (12) 2296 (15)***
Education
 ≤9 yearsa 479 (8) 145 (15) 150 (16) 156 (18) 960 (10) 1908 (12)***
 10–12 years 2774 (45) 464 (49) 503 (52) 446 (50) 4337 (47) 7376 (48)
 ≥13 years 2857 (47) 339 (36) 308 (32) 285 (32) 3886 (42)*** 6046 (39)
Country of birth
 Sweden 5522 (90) 843 (89) 859 (89) 775 (87) 8246 (90) 13,655 (89)
 Other than Sweden 588 (10) 105 (11) 102 (11) 112 (13) 937 (10) 1675 (11)
Type of living areab
 Larger cities 2692 (44) 446 (47) 369 (38) 407 (46) 3990 (43)*** 5817 (38)
 Medium-sized  municipalities 1914 (31) 281 (30) 320 (33) 269 (30) 2888 (31) 5307 (35)***
 Smaller  municipalities 1504 (25) 221 (23) 272 (28) 211 (24) 2305 (25) 4206 (27)***
Geographical regionc
 East Sweden 2596 (42) 426 (45) 331 (34) 379 (43) 3801 (41)*** 5872 (38)
 South Sweden 2247 (37) 319 (34) 414 (43) 329 (37) 3487 (38) 6572 (43)***
 North Sweden 1267 (21) 203 (21) 216 (22) 179 (20) 1895 (21)*** 2886 (19)

Results from two-tailed z-tests for all individuals identified from PAR versus SMSreg: *P≤0.05, **P≤0.01, ***P≤0.001. Bold indicates higher proportion among patients within a specific EDSS category, and italics indicate lower proportion in the EDSS category, as compared to all individuals identified from SMSreg, at P≤0.05, using two-tailed z-tests.

aIncludes 50 persons with missing educational level in the LISA register.

bBased on population density according to the H-region classification scheme: larger cities (H1–H2), medium-sized municipalities (H3–H4), or smaller municipalities (H5–H6), Statistics Sweden. Report no. MIS 2003:1.

cBased on Eurostat’s Nomenclature of Territorial Units for Statistics classification (NUTS1): East Sweden (SE1), South Sweden (SE2), or North Sweden (SE3), European Union amendment No 105/2007 to Regulation (EC) No 1059/2003.

EDSS: Expanded Disability Status Scale; MS: multiple sclerosis; n: number of people; PAR: the national patient register; SMSreg: the Swedish MS register.