Table 2. Most common health-related needs.

Need description	Need type	Recommendations
Need to communicate with multiple providers after discharge from the hospital, to know who their providers were, where they were located, and how to contact them after being discharged; for medically complex patients, which providers to contact for which medical problems	Logistical – Contact/Communication	Easy-to-read sheet clearly listing all providers, their contact information, what medical problems they were managing, and next scheduled appointment Registration for the institutional patient portal, My Health at Vanderbilt, access to their child's health information, and practice with the messaging and appointment functions
Need to use medical devices (e.g., gastrostomy tubes, tracheostomies) to administer care, perform relevant procedures, and troubleshoot problems	Informational intervention – Technique/Administration	Supplemental Web-based or mobile information sites or videos for a variety of medical devices (e.g., for gastrostomy tubes), a set of videos from St. Louis Children's Hospital ( http://www.stlouischildrens.org/our-services/general-surgery/video-caring-my-child-with-gastrostomy ) that cover common questions and has separate device-specific videos; sites were bookmarked on parents' mobile devices or Web browsers
Need to distinguish normal or benign symptoms (e.g., baby spit ups) from concerning signs or symptoms related to the patients' medical problems	Informational problem – Clinical presentation	Web-based or mobile information resources about the typical complaints in infancy and childhood, such as the KidsDoc app from the HealthyChildren.org sponsored by the American Academy of Pediatrics (e.g., https://www.healthychildren.org/english/tips-tools/apps/pages/default.aspx )
Need to know what questions to ask	Logistical – Contact/Communication	Question prompts lists, such as 10 Questions You Should Know from the Agency for Healthcare Research and Quality ( https://www.ahrq.gov/patients-consumers/patient-involvement/ask-your-doctor/10questions.html ) or AskMe3 ( http://www.npsf.org/page/askme3 ) from the Institute for Healthcare Improvement and National Patient Safety Foundation
Difficulty remembering questions and retaining information during hospital rounds	Logistical – Contact/Communication	Note pad apps or voice recording features present on smartphones and tablets
Assistance with finding reliable health information online	Logistical – Health information technology	National Library of Medicine (NLM) MedlinePlus video on Evaluating Internet Health Information ( https://medlineplus.gov/webeval/webeval.html ) and Guide to Healthy Web Surfing ( https://medlineplus.gov/healthywebsurfing.html )
Need for information about the child's prognosis	Informational problem – Prognosis	Disease-specific informational Web sites, vetted by the primary or relevant consulting care teams
Need for emotional support	Social – Emotional need	Disease-specific online or in-person support groups, for example, Tennessee Parent to Parent Matching Program (TNP2P), a state-funded program that matches parents with trained parent mentors who have a child who has gone through a similar disease process ( http://www.tndisability.org/parent-matching )