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. 2018 Aug 8;17:100. doi: 10.1186/s12904-018-0353-x

Table 2.

Key barriers and enablers

Normalisation Process Theory Construct Key enablers Key barriers
Coherence (what is the work) • CgDp signals a shift to a different type of care
• CgDp valued by staff as it supports systematic approach to end of life care
• CgDp legitimises caring for the dying in acute setting
• The need for CgDp suggestive of a failure in acute care provision
• Lack of education and training in principles of palliative care and care of the dying
• Professionals conceptualise CgDp as ‘everything’ or ‘nothing’ because challenged by uncertainty posed when variances or individualised care was required
Cognitive participation (who does the work) • CgDp empowers nursing staff to discuss EOL care with medical staff
• Guidance available from palliative care team
• Clear lines of responsibilities e.g. medical team lead decision making
• Medical profession willing to lead implementation of CgDp intervention
• Recognition that effective patient and family communication required
• Lack of genuine multidisciplinary team working
• CgDp being enacted without an interprofessional approach
• Lack of understanding of roles related to CgDp
• Allocation of roles and responsibilities tend to mirror acute practice roles (not recognising that a different approach is required e.g. MDT)
• Usual expert guidance structures challenged because EOL care not usual part of practice
Collective action (how does the work get done) • Familiar with CgDp documentation
• Effective collaboration between nursing and medical staff
• Established relationships with patients
• Nursing staff creating environment conducive to EOL care
• Palliative care team provides decision making support e.g. diagnosing dying; symptom management advice
• Continuity of care within speciality considered to be important e.g. home-ward
• Mentoring and learning occurring through practice
• Challenging to integrate effective EOL care in the context of acute setting (e.g. organisational pressures for discharge)
• EOL care provision infrequent activity
• Allied health tendency to disengage in and/or excluded from EOL care
• Senior medical officers not fully engaged in CgDp intervention e.g. delegate to juniors
• Absence of allied health engagement
• Documentation considered burdensome and not aligned to technology e.g. electronic medical records
• Lack of longitudinal palliative care planning resulting in reactive response to dying patients
• Rostering and staffing arrangement hamper allied health and palliative care not able to fully integrate and support
Reflexive monitoring (how is the work understood and changed) • Desire to integrate/improve EOL decision making processes
• Recognition that structured debriefing sessions are required improve quality of CgDp care
• Systematic audit and feedback processes required to inform and improve outcomes
• Few opportunities for meaningful clinical supervision to provide emotional support
• Staff find it challenging to find ways to meaningfully appraise the effectiveness of CgDp practices and outcomes