Table 4.

Main results on coping

First author Year	Methodology (n)	Main results
Nieto R [64] 2012	Pain: BPI; SOPA;	High pain intensity associate with “asking for assistance” and
	Coping: CSQ; CPCI	“resting”, and high catastrophizing
	DM1 (37)
Miró J [65] 2009	Pain: NRS; BPI; SOPA;Psychological functioning: SF-36;Coping: CSQ; CPCI;Social support: MSPSS DM1 (78), FSHD (104)	Pain-related catastrophizing associated with poor psychological functioning and increasing pain interference Perceived social support associated with lower pain interference and better psychological functioning
Nätterlund B [63] 1999	Coping: APC	Problem-focused strategies are not often use
	DM1 (46)	Most used coping strategy: “devices and tricks”
Ahlström [62] 1996	Quality of life: SIP; KT;	Emotion-focused strategies use twice as often as problem-focused ones
	Coping: MACS; 2 interviews (3 months apart) about illness-related problems and coping with these problems	Emotion-focused strategies are correlated with poorer quality of life
	DM1 (32)

Note: For more clarity, we did not develop all results. APC = Assessment of Problem-focused Coping self-reported; BPI = Brief Pain Inventory; CPCI = Chronic Pain Coping Inventory; CSQ = Coping Strategies Questionnaire (Catastrophizing subscale only); DM1 = Myotonic Dystrophy type 1; KT = Kaasas test; MACS = Mental Adjustement to Cancer Scale; MSPSS = Multidimensional Scale of Perceived Social Support; NRS = Numerical Rating Scale pain intensity; SF-36 = 36-item Short Form Health Survey; SIP = Sickness Impact Profil; SOPA = Survey of Pain Attitudes; TCI = Temperament and Character Inventory.