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. 2018 Jun 13;12(2):180–195.

Table 3.

Summary of main finding indicating themes, categories, and sub-categories

Content area Category Theme
Disease development Understanding the disease gradually
  • Perceiving early skin lesions

  • Considering other skin diseases

Fearing an agonizing disease
Feeling disease’s mental impact
  • Starting to worry about consequences

  • Being physically and socially limited

Living with the disease Sensing responsibility
  • Regretting own acts

  • Feeling angry

  • Reacting with self-disgust

  • Becoming sad

Taking on the blame
Facing stigma
  • Being rejected

Feeling isolated
  • Finding themselves excluded

Preventing others’ reactions
  • Hiding disease or self

  • Avoiding close contact

Struggling to cope
Internalizing reactions from others
  • Understanding others reactions

  • Tolerating others behavior

  • Appreciating others’ support

Healthcare and community Finding treatment difficult but acceptable
  • Feeling the need for medical care

  • Playing little role in treatment schemes

  • Being satisfied with treatment results

Longing for being seen and heard
Noting limited knowledge on CL
  • Meeting unawareness in the community

  • Experiencing ignorance within the healthcare system

Urging for prevention
  • High treatment costs

  • Considering current preventive methods as unsatisfactory