Table 3.
Summary of main finding indicating themes, categories, and sub-categories
Content area | Category | Theme |
---|---|---|
Disease development | Understanding the disease gradually
|
Fearing an agonizing disease |
Feeling disease’s mental impact
| ||
Living with the disease | Sensing responsibility
|
Taking on the blame |
Facing stigma
| ||
Feeling isolated
| ||
Preventing others’ reactions
|
Struggling to cope | |
Internalizing reactions from others
| ||
Healthcare and community | Finding treatment difficult but acceptable
|
Longing for being seen and heard |
Noting limited knowledge on CL
| ||
Urging for prevention
|