Table 3.
Summary Tracking Matrix Showing A-HRSI Modified Terms and Reasons for Modifications
| Domain | Initial version | Current version | Reason(s) for the modification |
|---|---|---|---|
| Physical Symptoms | |||
| I have pain | I have pain other than anal pain | Contextual information added per participant recommendation in Round 1 to differentiate general pain from anal pain. | |
| I have itching on or around the anus | I have itching in or around the anus | Participants suggested wording change during Round 1 to improve comprehension. | |
| I have external tags outside my anus | – | Item dropped from A-HRSI due to poor comprehension across three rounds of cognitive interviewing. Concept not amenable to participant reporting. | |
| I have discharge/seeping/wetness/secretion in my anal area | I have discharge (wetness) in my anal area | Participants preferred discharge (wetness) for this concept when probed during Round 1. | |
| Physical Impacts | |||
| I have problems completing daily chores at home (cleaning, cooking, laundry, house maintenance) | I have problems completing daily household chores (e.g., cleaning, cooking, laundry, house maintenance) | Participants preferred the use of “daily household chores” rather than “daily chores at home” for this concept in Round 1. | |
| I have problems participating in leisure activities (entertainment, relaxing) | I have problems participating in leisure activities (e.g., watching television, relaxing) | Participants preferred the use of “watching television” when describing leisure activities rather than the broad “entertainment” term during Round 1. | |
| – | I have problems with sitting | Item added after completion of Round 3 per patient recommendation. | |
| Psychological Symptoms | |||
| I enjoy sex less | I have a decreased enjoyment of anal sexual activity | Participants preferred the concept of “decreased enjoyment” during Round 1. | |
| – | I have a decreased enjoyment of forms of sexual activity other than anal sexual activity | Item added after completion of Round 1 per patient recommendation. | |
| I have a decreased desire for anal sex | I have a decreased desire for anal sexual activity | Participants preferred that the concept of “sex” be referred to as “sexual activity” during Round 1. | |
| I have decreased desire for forms of sexual activity (other than anal sex) | I have a decreased desire for forms of sexual activity other than anal sexual activity | Participants preferred that the concept of “sex” be referred to as “sexual activity” during Round 1. | |
| I have problems with my romantic relationships | I have problems with my intimate relationships | Participants preferred the use of “intimate” rather than “romantic” to describe their relationships as part of Round 1. | |
| – | I am worried about my condition getting worse | Item added after completion of Round 3 per expert clinician panel recommendation. |