Table 1.
Demographics and baseline characteristics per country and case.
| Country | Case | People interviewed (number, gender and role) | Gender of the person with advanced dementia | Age of the person with advanced dementia | Years since diagnosis of advanced dementia |
Current setting of the person with advanced dementia | Main caregiver of the person with adavanced dementia | Family support (involvement level) | Communication skills of the person with dementia |
|---|---|---|---|---|---|---|---|---|---|
| Scotland | 1 | 1-Pwd (F) 2-Husband (M) 3-Nurse (F) |
Female | N/A | 1 | Own home | Husband | Direct | Yes |
| 2 | 1-Pwd (M) 2-Daughter (F) 3-Healthcare staff (M) |
Male | N/A | 1 | Own home/hospital ward | Daughter | Direct | Yes | |
| 3 | 1-Pwd (F) 2-Nurse (F) |
Female | N/A | 4 | Nursing home | Healthcare staff | Indirect | Yes | |
| Slovenia | 1 | 1-Pwd (F) 2-Daughter (F) 3-Nurse (F) |
Female | N/A | N/A | Own home | Daughter | Direct | Yes |
| 2 | 1-Pwd (F) 2-Social worker (M) 3-Nurse (F) |
Female | 79 | 2 | Nursing home | Healthcare staff | Indirect | YES | |
| 3 | 1-Nurse (F) | Female | - | - | - | - | - | - | |
| Portugal | 1 | 1-Pwd (F) 2-Husband (M) 3-Nurse (F) |
Female | 83 | 3 | Own home | Husband | Direct | No |
| 2 | 1-Pwd (M) 2-Wife (F) 3-Daughter (F) 4-Nurse (F) |
Male | 85 | 5 | Own home | Wife | Direct | Yes | |
| 3 | 1-Pwd (M) 2-Wife (F) 3-Nurse (F) |
Male | 65 | 2 | Own home/day centre | Wife | Direct | Yes | |
| 4 | 1-Pwd (M) 2-Daughter (F) 3- Nurse (F) |
Male | 83 | 1 | Relative’s home/day centre | Daughter | Direct | Yes | |
| Finland | 1 | 1-Pwd (M) 2-Wife (F) |
Male | 71 | 6 | Own home/day centre | Wife | Direct | Yes |
| 2 | 1-Pwd (F) 2-Daughter (F) |
Female | 80 | 2 | Dementia care home | Healthcare staff | Indirect | Yes | |
| 3 | 1-Pwd (F) 2-Daughter (F) |
Female | 88 | 2 | Own home | Healthcare staff | Indirect | Yes | |
| Sweden | 1 | 1-Pwd (F) 2-Daughter (F) |
Female | 71 | 6 | Nursing home | Family and healthcare staff | Indirect | Yes |
| 2 | 1-Pwd (F) 2-Husband (M) |
Female | 78 | N/A | Nursing home | Healthcare staff | Indirect | No | |
| 3 | 1-Pwd (M) 2-Wife (F) |
Male | 80 | N/A | Nursing home | Healthcare staff | Indirect | No | |
| Czech republic | 1 | 1-Pwd (F) 2-Daughter (F) |
Female | 90 | 17 | Own home/hospital ward | Daughter | Direct | No |
| 2 | 1-Pwd (F) 2-Daughter in law (F) 3- Son (M) |
Female | 81 | 7 | Own home | Daughter in law | Direct | No | |
| 3 | 1-Pwd (F) 2- Daughter (F) |
Female | 86 | 12 | Own home | Daughter | Direct | No | |
| Spain | 1 | 1-Pwd (F) 2-Daughter (F) 3-Psycologist (F) |
Female | 83 | 5 | Relative’s home/day centre | Daughter | Direct | Yes |
| 2 | 1-Pwd (M) 2-Daughter (F) 3-Grandchild (F) |
Male | 80 | 3 | Own home | Daughter | Direct | No | |
| 3 | 1-Pwd (F) 2- Husband (M) 3- Physiotherapist (M) |
Female | 64 | 1 | Own home | Husband | Direct | Yes | |
| Total | 22 |
|
15 Females 7 Males |
Media: 79.23 Years old | Media: 5.68 Years |
8 Own home 2 Own home/hospital ward 3 Own home/day centre 2 Relative’s home/day centre 5 Nursing home 1 Dementia care home |
8 Female relatives 3 Male relatives 6 Healthcare staff |
14 Direct 7 Indirect |
14 Yes 7 No |