Men/Women |
29/168 |
15/85 |
27/175 |
13/87 |
Age |
|
|
|
|
20-29 |
12 |
6 |
14 |
7 |
30-39 |
20 |
10 |
24 |
12 |
40-49 |
34 |
18 |
30 |
15 |
50-59 |
79 |
40 |
62 |
30 |
60-69 |
39 |
20 |
56 |
28 |
>70 |
12 |
6 |
16 |
8 |
Married or in a relationship/Single |
163/33 |
83/17 |
167/35 |
83/17 |
Relationship to the patient |
|
|
|
|
Father/mother |
7/85 |
47 |
6/96 |
51 |
Son/daughter |
13/21 |
17 |
7/17 |
12 |
Brother/sister |
2/15 |
9 |
1/13 |
7 |
Partner (male/female) |
23/19 |
21 |
27/20 |
23 |
Other relationship |
7 |
4 |
7 |
3 |
Non valid answers |
4 |
2 |
8 |
4 |
Shared household with the affected person |
|
|
|
|
Yes |
85 |
43 |
91 |
45 |
No |
80 |
41 |
84 |
42 |
Sometimes |
31 |
16 |
27 |
13 |
Living situation |
|
|
|
|
In a city/town |
183 |
93 |
185 |
92 |
On the country-side |
13 |
7 |
17 |
8 |
Education |
|
|
|
|
Elementary school |
9 |
5 |
14 |
7 |
Upper secondary school |
35 |
18 |
34 |
17 |
University/higher education |
150 |
76 |
149 |
74 |
Other |
2 |
1 |
5 |
2 |
Work situation |
|
|
|
|
Employed |
153 |
78 |
147 |
73 |
Not working |
43 |
22 |
55 |
27 |
Main diagnosis as reported by participants |
|
|
|
|
Somatic diagnosis |
25 |
13 |
35 |
17 |
Psychiatric diagnosis |
171 |
87 |
166 |
82 |
Depression/anxiety disorders |
74 |
38 |
54 |
27 |
Schizophrenia spectrum/psychotic disorders (incl. bipolar disorder) |
33 |
17 |
43 |
21 |
Autism spectrum/neurodevelopmental disorders |
33 |
17 |
38 |
19 |
Other (including personality disorders) |
28 |
14 |
30 |
15 |
Missing |
- |
- |
1 |
1 |
Time since diagnosis (in years) |
|
|
|
|
<1 |
9 |
4 |
15 |
8 |
1-5 |
72 |
37 |
65 |
32 |
6-10 |
37 |
19 |
41 |
20 |
11-15 |
23 |
12 |
27 |
13 |
>15 |
55 |
28 |
54 |
27 |
Type of support to patient (several answers possible) |
|
|
|
|
Emotional support |
185 |
94 |
186 |
92 |
Help with daily care (e.g. hygiene, dressing) |
31 |
16 |
27 |
13 |
Practical support (e.g. cleaning, transportation) |
125 |
64 |
134 |
66 |
Economical support |
86 |
44 |
85 |
42 |
Contact with health care/other organizations |
99 |
51 |
112 |
55 |
Other help |
60 |
31 |
55 |
27 |
Caregiving in hours/week |
|
|
|
|
<1 |
7 |
3 |
13 |
7 |
1-15 |
112 |
57 |
122 |
60 |
16-30 |
30 |
15 |
25 |
12 |
31-45 |
9 |
5 |
10 |
5 |
>45 |
8 |
4 |
10 |
5 |
“feels like 24/7” |
9 |
5 |
4 |
2 |
“difficult to say/don’t know” |
21 |
11 |
18 |
9 |
Self-rated own physical health |
|
|
|
|
Very good |
30 |
15 |
31 |
15 |
Good |
127 |
65 |
131 |
65 |
Bad |
34 |
17 |
38 |
19 |
Very bad |
5 |
3 |
2 |
1 |
Self-rated own mental health |
|
|
|
|
Very good |
15 |
8 |
13 |
6 |
Good |
93 |
47 |
91 |
45 |
Bad |
84 |
43 |
92 |
46 |
Very bad |
4 |
2 |
6 |
3 |