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. 2018 Mar 26;12:46–56. doi: 10.1016/j.invent.2018.03.004

Table 2.

Background characteristics of the baseline sample (n = 398).

Baseline n=398
Experiment group n=196
WLC n=202
n % n %
Men/Women 29/168 15/85 27/175 13/87
Age
20-29 12 6 14 7
30-39 20 10 24 12
40-49 34 18 30 15
50-59 79 40 62 30
60-69 39 20 56 28
>70 12 6 16 8
Married or in a relationship/Single 163/33 83/17 167/35 83/17
Relationship to the patient
Father/mother 7/85 47 6/96 51
Son/daughter 13/21 17 7/17 12
Brother/sister 2/15 9 1/13 7
Partner (male/female) 23/19 21 27/20 23
Other relationship 7 4 7 3
Non valid answers 4 2 8 4
Shared household with the affected person
Yes 85 43 91 45
No 80 41 84 42
Sometimes 31 16 27 13
Living situation
In a city/town 183 93 185 92
On the country-side 13 7 17 8
Education
Elementary school 9 5 14 7
Upper secondary school 35 18 34 17
University/higher education 150 76 149 74
Other 2 1 5 2
Work situation
Employed 153 78 147 73
Not working 43 22 55 27
Main diagnosis as reported by participants
Somatic diagnosis 25 13 35 17
Psychiatric diagnosis 171 87 166 82
 Depression/anxiety disorders 74 38 54 27
 Schizophrenia spectrum/psychotic disorders (incl. bipolar disorder) 33 17 43 21
 Autism spectrum/neurodevelopmental disorders 33 17 38 19
 Other (including personality disorders) 28 14 30 15
Missing - - 1 1
Time since diagnosis (in years)
<1 9 4 15 8
1-5 72 37 65 32
6-10 37 19 41 20
11-15 23 12 27 13
>15 55 28 54 27
Type of support to patient (several answers possible)
Emotional support 185 94 186 92
Help with daily care (e.g. hygiene, dressing) 31 16 27 13
Practical support (e.g. cleaning, transportation) 125 64 134 66
Economical support 86 44 85 42
Contact with health care/other organizations 99 51 112 55
Other help 60 31 55 27
Caregiving in hours/week
<1 7 3 13 7
1-15 112 57 122 60
16-30 30 15 25 12
31-45 9 5 10 5
>45 8 4 10 5
“feels like 24/7” 9 5 4 2
“difficult to say/don’t know” 21 11 18 9
Self-rated own physical health
Very good 30 15 31 15
Good 127 65 131 65
Bad 34 17 38 19
Very bad 5 3 2 1
Self-rated own mental health
Very good 15 8 13 6
Good 93 47 91 45
Bad 84 43 92 46
Very bad 4 2 6 3